My name is Grace and I am new here.
After the 1st hysterectomy and debulking, followed by a round of chemo (carboplatin and paclitaxel), I was in remission for 11 months. A CT and PET scan then showed some nodules. These were removed by a key hole surgery and I am currently receiving chemo again, to deal with smaller scattered bits of cancer in the abdominal cavity. This time it is cisplatin and gemcitabine, with Avastin thrown in recently too. I am about half way through the second round of chemo, but my CA125 is not going down. It is still very low compared to other people (it was only 16 when I had my operation and now it is 30, going up little by little despite the chemo). I am worried that I became resistant to the drugs and am thinking about enrolling myself in the cantrixil clinical trial. I live in Perth WA and the trial is in Sydney, Brisbane and Adelaide. I don't know how to work out the logistics of it. The cost of flying in/out will also be a factor. Not sure which hospital to choose either. Have any of you been in this situation? Any other thoughts?
Warm hugs to everybody.