I have just completed my excellent treatment for stage 3, high grade serous carcinoma (falopian tube or Ovarian in origin). I live in the centre of Bath and my doctors and surgeon and wonderful treatment was at the RUH in Bath.
I had the Carbo/taxol regimen with thorough debulking surgery after 4 rounds. Then 2 more rounds of Chemo. My CA-125 went from 3000 to the present day 9. And there is no sign of disease or spread in my CT scans. The doctor assured me that I am in the best possible position.
I did however, start out very ill, from a totally fit, vegetarian, Self-employed, working full time, 71 year old energetic woman, I became completely weak, breathless and unable to eat in just a week's time.
I was originally diagnosed as stage 4, because of the pleural effusion that crushed my lungs, but that was downgraded, thankfully, to stage 3, as there was no other sign of spread to the inside of any organs except my ovaries. But there were hundreds of tumers and lesions all over the outside of my bowels and inside my abdomens cavity.
And, I had blood clots inside both lungs, caused by "sticky blood" another gift from the cancer.
What I am getting at, is that the cancer and the treatment wiped me out, and except for a few moments here and there, I have been basically bed ridden for the last 7 months.
At my final visit, my lovely doctor advised me to take it slow, that the comeback from the place I was in, was not going to be quick. She said not to expect more than 75% of what I was originally after 2 months from now.
I try to do more each day, simple excercises, and walking around my little house, ( it's an ancient 4 story, stone house in the city centre) I do simple tasks, like sweeping the floor and a tiny bit of tidying... but I do get breathless quickly, even though I think my lungs are fine now.
I would like to hear from other ladies who have managed their recovery after their first line treatment with Carbo/taxol and surgery. How are you? What was your plan?