Here I am writing from my hospital bed, where I have been since 21st December, having missed all the Xmas festivities. They are waiting for my temp to remain stable for 48 hours before I can go home.
If any of you remember I started the OCTOPUS trial in September which includes weekly Taxol plus trial drug in tablet form. I was excited and full of expectation to be doing something positive. I am a bit of a ginnie pig at my hospital RBH, although I have been in contact with RMH as well, who were very helpful and said I could return at any time. I felt the side effects were a little excessive chills, disorientation and the worst rash I have ever seen on my arms and torso, which was brought under control with steroids.
A fever of 38.9 brought me to A&E, but apparently I was not neutrapeanic so I wasn't put in isolation on the chemo ward, which was full anyway. I was admitted, but guess where they put me...........on the respiratory ward, with people coughing their hearts out although as you all know we avoid people like that all the time. I have had lots of IV antibiotics, but almost as soon as my temp goes down, it goes back up again. Oh and guess what I now have a cough, which I didn't have when I came in. Apparently I have A UTI and that's what I am being treated for.
So at present I am not on chemo treatment at all and have to recover from this until it restarts. I have to have a normal temp for 48 hours before I can go home. The nurse just took it. - 37.6!!
Sorry for the rant but pretty peed off.
Lynne x
Written by
111173
To view profiles and participate in discussions please or .
Oh Lynne. What a poor little soul you are. Missing Christmas at home must be awful. I hope you get home soon and in the meantime I'm organising an escape committee. Be packed and ready at midnight but stay away from the windows - we will be coming in through the little slot they allow you to open for air. Tell no-one. Eat this message immediately.
Hi Lynne, bet you are peed off having to stay in over Christmas not the best place to be. I thought I was going to be eating my Christmas dinner in hospital, but got released on Friday,. Also caught a cough while I was in, the person in the next bed was coughing all day and night, put me in a room of my own after that, should of done that in the first place. Hope you will soon be home and feeling better. Love Julie xx
I went to hospital 3 times last week but went home at night! My mouthwash is my godsend...won't go anywhere without it and have not had an infection since becoming religious about it(!) Fingers crossed for you and hope you are out soon, love and cyber hugs Chris xxx
Bless you lynne, I can only imagine your frustration at being in hospital over Christmas and on the chest ward to boot, awesome planning by somebody not!!! . Do you wonder if they do this to finish us off?
Your temperature is heading in the right direction, I don’t know what’s normal for you but mine is usually around 36.5 depending on which ear I take it in 🤨 so you’re getting there. I hope you’re home for the new year. We heal better at home sometimes don’t you think? .
I’m joining the escape committee, I’ll be the tall one giggling and shushing everybody else see you later lovely ❤️Xx Jane
I hope that your hospital meals are as good as the ones DollysMum is getting at The Christie. Have you had any tests since starting the trial to say if things are working? It sounds as if the side-effects are strong.
So sorry to hear about the cough and respiratory ward. I've had a cough for nigh on two months now and have just cracked a tooth with the cough sweets I keep sucking (biting). Used to be Quality Street at Christmas!
I will be joining Kryssy but I will come through the door like a normal person.
However, I will be wearing my invisibility cloak like Harry Potter's and instead of my wig, a hat just like Professor Mcgoenagall's but you won't be able to spot that under the cloak......
Awww LLynne no need to apologise for having a rubbish time! No flaming wonder you are peed off! Sounds awful and I think I'd have been moaning really loudly if I was in your position! Lets hope you are now on the mend and can get home sooner rather than later!. In the meantime sending you a big hug xx Kathy xx
I hope by now your temp is going down and if you have not left the hospital yet all the ovacome ladies will have virtually planned your escape now.Take care and all the best for 2018.😆😀
Sorry you have been imprisoned over Christmas. I was in hospital with a raised temperature at the beginning of this year, shortly after finishing chemo, and was also put on the respiratory ward. But as I had also vomited before admission, I was put in a side room in case I infected the coughers. This was better, and it also meant I got more sleep at night. Hoping the escape committee has now done its job. Di
Lynne this is rubbish. I'm so sorry you have had to spend all this time in hospital. I often worry when I feel I should ring my hospital hotline that this is what will happen. I once had a massive set to with a sister on a ward in my cancer hospital about going into a ward with 5 others. I refused and said I would rather go home and take my chances. I waited out in the corridor for 4 hours and a room came free so I went into that. I know that easy to write now and every situation is different but I just wanted to say this happens a lot round the country and it shouldn't. I really really hope you are home soon and can have a belated celebration of some sort with your loved ones.
So sorry Lynne. Nothing to add to the above except I would like to be on your escape committee and wishing your temps level out to normal for the period of time required to get you home. Then stay there (temps AND you). Another virtual hug coming your way.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
This cycle is over!!!
Update on ICON8 trial
Writing this from my hospital bed.....
