Here I am writing from my hospital bed, where I have been since 21st December, having missed all the Xmas festivities. They are waiting for my temp to remain stable for 48 hours before I can go home.
If any of you remember I started the OCTOPUS trial in September which includes weekly Taxol plus trial drug in tablet form. I was excited and full of expectation to be doing something positive. I am a bit of a ginnie pig at my hospital RBH, although I have been in contact with RMH as well, who were very helpful and said I could return at any time. I felt the side effects were a little excessive chills, disorientation and the worst rash I have ever seen on my arms and torso, which was brought under control with steroids.
A fever of 38.9 brought me to A&E, but apparently I was not neutrapeanic so I wasn't put in isolation on the chemo ward, which was full anyway. I was admitted, but guess where they put me...........on the respiratory ward, with people coughing their hearts out although as you all know we avoid people like that all the time. I have had lots of IV antibiotics, but almost as soon as my temp goes down, it goes back up again. Oh and guess what I now have a cough, which I didn't have when I came in. Apparently I have A UTI and that's what I am being treated for.
So at present I am not on chemo treatment at all and have to recover from this until it restarts. I have to have a normal temp for 48 hours before I can go home. The nurse just took it. - 37.6!!
Sorry for the rant but pretty peed off.