I've been lurking around mostly so far, reason being that i was on my operation "holiday from chemo" (after full hysto etc. to remove my stage 3c) and felt almost normal for a few weeks, after the initial op pain went. My brain came back and I could enjoy doing some work from home! I have thoroughly enjoyed the (sadly temporary) return of my taste buds and have been glugging gorgeous red wine again.
Today feels like i am crashing back to reality, as I go in for a peritoneal portacath insertion that I have been completely dreading. Then I start on a chemo trial tomorrow. Purpose is to pursue longer remiss ions and higher 5 year survival rates - initial US and Canadian runs have been promising.
Interested if anyone else has been on this one - or on IP at all really - and have experience to share - you get randomised into
~ EITHER carboplatin/taxol the normal IV way
~ OR the carboplatin is delivered 'straight to site' as it were via this IP port in my hip area plus taxol IV as usual in the arm
~ OR cisplatin IP and taxol as normal IV in the arm.
Cisplatin is the USA standard drug for OC according to my onc. It takes 8 friggin' hours to go in via the port and you have to be rehydrated by drip before AND after so it'll be something like a 10 hour round trip... Naturally I've been put in that group. Three lots with the final hit on Christmas Eve, oh joy.
I'll report back in case of use to anyone - if any of you ladies have gone before me do share...!