Having had two ascitec drains over the last month (approx 8 litres removed from my distended tummy each time), I have now joined the new Octova trial at the Glasgow Beatson. The Phase II randomised three arm trial is open to those who are platinum resistant with BRCA/genetic mutations and provides the opportunity to access olaparib, and a new drug cedinarib. Two arms allow trialling of the PARP inhibitors, and the other arm is standard weekly Taxol (with a sweetner of access to Olaparib if your cancer gets worse...). Guess which arm I was selected for? Hey ho.
So now I am travelling 150 miles every week for a treatment I could have at my local hospital which is 20 mins walk away.
I started the trial yesterday, having had an unscheduled overnight stay for the drain at the Beatson. I had a sixth sense I would be allocated the Taxol in any case, and my rational side tells me that it's a win/win option as there is no proof that PARP inhibitors work for platinum resistant patients - yet. I am v tired as the hospital ward was noisy with a disturbed night, and I had a bit of a weep when I was informed by a junior doctor (prior to seeing the Prof in charge of the trial) that I was "going for chemo this afternoon." I put two and two together.
So here we go again. The one chemo treatment I promised myself in 2014 I'd never take again. I'll need those BIG pants BIG style this year.
*for those not in the UK or not watching day-time TV (it comes to us all...), Pointless is a TV gameshow where contestants need to select the most obscure/unlikely correct answer to a question in order to win a small-ish cash prize