So, after finding out my cancer returned in September, less than 3 months after 1st line treatment, I now begin 2nd line which will be caeylx alone this coming Monday.
I had a 2nd opinion from the Royal Marsden, where unfortunately I found out that I wasn't eligible for the Forward 1 trial but also that I now have a 4.5 cm inoperable tumour near my liver sitting right on a major blood vessel. ( along with multiple tumours in the plural space )
My treatment to date has been confirmed as exactly how I would have been treated at the Royal Marsden ( not that I ever doubted my amazing team ) however was looking at my options due to recurring so soon.
It seems I fall into a very slim category now affecting my options, I'm platinum resistant, negative for folate receptor, but also my tumours
are unable to be biopsied, meaning the one trial I would be eligible for I can't access as they have to take a fresh biopsy.
So I am accepting that Caeylx at home is the one for me! Being surrounded by my beautiful family and friends, I won't miss the 8 hour round trip to London although I found the hospital at the top of their game and incredibly welcoming.
I have the Royal Marsden cook book, it's fab, lots of advice as well as the recipes to see you through treatment and beyond.
Have any of you ladies had a longer break after 2nd line of caeylx. It's highly likely the carbo/taxol made no difference to my disease as my areas of recurrence are in a completely different place and all of the disease removed during debulking remains NED. Looking back at my previous CT scans now my recurrence is measurable, it appears these areas were suggestive of 'something' on both scans since End of treatment. Interestingly I did have a 13 week delay restating chemotherapy post surgery due to pancreatic leak and wound opening.
It's hard not to try and find answers, but I think there are no specifics in this disease!
Sending you all the most positive energy and calming vibes to face whatever it is you are right now. Live in the moment my friends xxxxxxxx