Hello, I haven't posted for a while having been lucky enough to have "time off" after 2 CT scans, four months apart, showed some shrinkage of 2 of the 3 tumours. I was diagnosed with Ca Ov nearly 5 years ago and have had 3 ops and 4 lots of chemo.
My oncologist was refusing to give me more CT scans despite me proving my CA125 gives false, low readings. Luckily a bowel surgeon (had to have a bowel resection 2 years ago caused by one of the 2 cancer ops I've had) supported my request and oncologist finally gave in. That was this March and sure enough one of the existing tumours has grown and I now have a new site in the lower mesenteric/upper presacral region (Iv'e failed to find its location).
Oncologist would prefer me to go to another consultant/hospital and has been trying to push me for a drugs trial at the Royal Marsden (MILO study) and although I'd love to be transferred there, this drugs trial is neither suitable chemically or logistically.
Currently having another battle with her to repeat the Carbo/Caelyx regime I had October 2014 which gave me the only time off in nearly 5 years.
Has anyone else been referred for this MILO study and is anyone else being treated from S Hampshire at the Royal Marsden?