Any advice octopus trial

[Rosanne123]

I'm not sure if I'm jumping the gun but as a lot of you will no my story I have got my second opinion for Wednesday morning with susanna banjeree at the royal marsden the secatary phoned me this evening and said they will take bloods and give me an ecg they already know I want a trial so I'm thinking it's the octopus trial because that is her trial as any one been on this trial if so did it work is it still working any advice would be much appreciated hope you are all well thanks Rosanne xxx

[Teresa_K]

Hi Rosanne

I am on the Octopus trial, but as it is a trial the study is blinded and so do not know whether I am taking AZD2014 or placebo. I have another month of taxol plus "drug". So far treatment is going in the right direction, reduced CA125 and tumour size.

I think there is another trial just about to start called "Forward".

Sorry can't give you a definitive answer about the future on this trial, but sadly no-one can. Just being on the trial seems to provide personal attention which is great.

Hope this helps

Tx

[Rosanne123 in reply to Teresa_K]

Thanks I see by your post you haven't had 3weekly chemo I found that ok at least you have got another plan as your cancer moved at all or is it still the same good luck hope you are fine Rosanne xxx

[Teresa_K in reply to Rosanne123]

I had weekly taxol plus ??. I have found This has been much easier to bear than last years carbo/taxol once every 3 weeks regime.

CA125 was 8,000 before starting this trial and at last blood test was down to 129. The tumours now discernibly smaller they are spread throughout peritoneum but not in lymph nodes at present.

Tx

[Rosanne123 in reply to Teresa_K]

Thanks for your reply hope you are ok xxx

[lizziebee]

I did the Octopus trial, unfortunately it didn't work for me and although initial results were encouraging I couldn't complete cycle 6 as I had massive ascites and was taken off trial.

I have had a long term drain fitted and after 6 weeks the ascites appears to have dried up. See my oncologist next week to decide what's next, could be another trial but not much available at the moment.

Sorry I can't offer you good news but as with most trials it's just down to luck to be on the trial drug wing.

Hope it goes well for you.

Best wishes, Liz

[Rosanne123 in reply to lizziebee]

Thanks for your reply Teresa as said there's a new trial coming out called forward maybe they will give you this I have asticies a few weeks back got drained of is your cancer moved to other parts because I have nodules in my abdomen and pelvis good luck for next week hope you are ok Rosanne xxx