So sad

[jools53]

53 oc111c advanced surgery debulk 2016 now back here I go again ! Nodules in abdomen! Gemzar carbo start soon followed by a avastin ! Hope it works ca rising ! Told not terminal but won't say anything about time relating to disease! Just fill s not numb hope I have more time, maybe over worrying to be expected .cant stop thinking about my granddaughter love her so much xx

[Friscok12]

How long were you in remission xx

[Katmal-UK]

Dont give up, Ive had two recurrences and still here in my tenth year. Do you know what your CA125 is? Thers no reason to think that your remission wont be longer next time. My first was long, my second relatively short and now current remission is nearly as long as the first. Stay strong and enjoy each day with your grandaughter, how old is she btw, mines just turned two and such a joy, though I may be biased xx

[jools53 in reply to Katmal-UK]

Ca125 160 ! Just under twelve months remission! She's eight love of my life xx thank you for your kind words god bless xx

[rosieb7 in reply to Katmal-UK]

Katmal I love reading your posts you are so positive. Was your recurrence in peritoneum? How long were each remissions as I had my first recurrence in peritoneum and very scared after lioking on internet about peritoneal cancer. Lots of love xxxx

[Katmal-UK in reply to rosieb7]

Hi Rosie, yes both recurrences spread on surface of peritoneum as well as right groin area where I assume my right ovary used to be. Dont google, google cant tell u wat will happen to you. You are unique. If i listened to my surgeon and macmillan nurse I should have been 6 foot under 8 years ago. Embrace each day, stay strong. I do hope you are doing ok. R u on chemo now? Sending u a big hug. Kathy xx

[rosieb7 in reply to Katmal-UK]

Hi Kathy,

Thank you for for replying. I don't know anyone else who has had a recurrence to peritoneum. They found about six nodules a couple on surface of liver. Finished chemo last year. Can you please tell me how long each remission was once it was found on peritoneum? I won't go on google again as it really frightened me the statistics were really awful. Big hugs xxx

[Katmal-UK in reply to rosieb7]

Hi. The first was about 14 months i think, during which time i was on a trial for cederanib, the second (current ) will be 4 years at the end of August. Statistics on google are just that, statistics. I had 'several' patches of cancer on my peritonium. I hope that info helps u xx

[rosieb7 in reply to Katmal-UK]

Hi,

Thanks for replying and yes it helps a lot. It's amazing it's been four years, it gives me hope. Yes the statistics on google are horrible. I love hearing from you. Take care and sending you lots of love and a big hug xxxx

[CallmeMum]

Hi lovely,

Please don't worry too much easier said than done I know but there are plenty of people on here who have had reoccurrences and my special person has had two reoccurrences she was initially told 6 months to live with chemo she's here 2 years 4 months later xxx

[thesilent1]

Hi Jools, so sorry your having to start treatment again so soon. You know, don't ask them how long you have, you are NOT a statistic and this disease reacts differently with us all. It is tough, very tough at times but trying to look at all the positives will help you, - your in a country where you can have access to treatment easily and free, if you lose your hair again, well not waxing, shaving or plucking for a while has its advantages, think of the money you'll save on hairdresser appointments lol. Seriously though, you've done it before, once you get back in that chair you'll tackle it all again and hopefully kick the beast into touch! There are some ladies on this site who have had longer remission second time around. Don't give up hope, without it we have nothing. Just keep on focusing on that little granddaughter of yours. You've lots to live for and you can do this. Big hugs. Ann xx

[jools53]

Thank you so much xx

[Hidden]

Recurrence is a hard thing to take perhaps harder than the original diagnosis as we are not prepared for it to return. I had Gem with Avastin and although it was tiring, it worked for me so I would say go for it. It wont be easy but once you start treatment you will feel more settled. I was diagnosed 2006 had Carbo taxol and Carbon Gem and in 2013 had Gem with Avastin and I have done far better than anticipated. I am stable for now had ultra sound which was clear recently and last week ct scan but got no results as yet for that. Hoping all will still be okay in that scan. I have a grandchild due end of July so fingers toes crossed all will be okay.

[Wendies in reply to Hidden]

Hi, just wondering what stage are you?

[Hidden in reply to Wendies]

Hi Wendies as part of my coping skills, I never asked, I know its in the peritoneum or was before Avastin etc but the tumours shrunk right back. It didnt spread anywhere else thankfully so far

[Gleedy]

Your story is identical to mine. Ive already had Avastin but with CA 51 four weeks ago my oncologist has said its back and i will need chemo soon. She mentioned carbo/gem and then a PARP inhibitor. I had my scan yesterday and see her on 19th July. Ive had my melt down and now have got my fight. I have to do this for my children who i can't leave. I wish you luck. Both of us never thought it would be this quick i know. Take strength frim the stories on here.....i do all the time. Xxx

[Hidden in reply to Gleedy]

wish you the best Gleedy, well I have had good experience with carbo gem in 2013 and I know a lady doing well on the Parp so take heart from this.

[Gleedy in reply to Hidden]

Thank you. Xx

[Solange]

Jools, please don't despair. I think we're all in shock when we find we have to have more treatment. The thought of leaving our loved ones is horrific. I think you'll feel better once you're back on treatment, actually doing something to bash those nodules in your abdomen. I was diagnosed ten and a half years ago but didn't expect to live five months. I've had Gem, Carbo and 17 Avastins and it helped a lot.

Sending love and a big hug and heaps of wishes for a good result from your Chemo, Solange 😊

[jools53 in reply to Solange]

That's really encouraging xx

[sophieturgeon]

I haven't been through that so I won't pretend to understand. From what the other ladies are saying, it seems to be happening fairly often, unfortunately. All I can say is to try to live in the moment (easier said than done, I know), and try to stop worrying. You need to avoid stress. I will keep you along with all the other ladies here in my thoughts and prayers

[Di16]

It's always a shock when they tell you the cancer's back, and can make you feel down at first. I've had 4 recurrences, felt particularly depressed initially with 2 of them, but both times my frame of mind gradually improved, and I've overcome each time so far. Di