Well ....where to begin ? So many of you have asked after me , and it is true to say that I have been keeping a low profile .
Life has dealt us a rotten hand since November and keeping my head down has been my means of survival . Also , whilst I do read messages everyday , I often feel that I have , these days , little to offer which is new .
In November , my husband had a biopsy for prostate trouble , enlarged on MRI , highish PSA , and all came to naught : BUT prophylactic anti biotics didn't work and he developed Sepsis within 24 hrs of biopsy and we almost lost him .
Brilliant doctors ( some of whom I had taught ) , brought him back from nowhere .
Over Xmas and New Year ,he was at home but fighting various infections and by end of January it was clear that his Vasculitis of six years ago was back wit a vengeance ,
( then , two weeks before I was diagnosed with OC ) . Horrible sense of deja vu ....
he came out of hospital with same meds as then and we set to ......
after four days at home not well , he had a bilateral stroke , clots on either side !
He was back in hospital for another fortnight . Big son living at home with girlfriend , was a great help but didn't really cope emotionally .
Very few signs of the strokes but community tea have been very good .
The vasculitis however has left his hands without sensation other than pain , and his left leg/foot , floppy . Feet dreadfully painful . He is full of all sorts of drugs !
We are alive thanks to modern science and the NHS , without doubt .
Meanwhile , I have been on Pembolizumab, Phase 2 trial since last August .
For those of you "meeting " me for the first time , I have had five routes of chemo in six years and still going strong !
Noting lasts forever , and throughout March I had severe bouts of nausea and ghastly stomach , which was thought to be colitis , a side effect of drug . Sigmoidoscopy proved negative as did biopsies .
Last weekend , it all kicked off again , but this time with a rash that was so bad , I was taken into hospital as a emergency !!
Poorly husband at home , me in UCH ....96 year old mother in melt down ....life does not get easier . Huge amounts of fluids , anti histamines , diprobase , and I am back home . Big son getting used to dramas and now back at his workplace .
Again , astonishing care at UCH , private room ( in case I was infectious and , for my dignity ! ).... "Clearly , a drug reaction" and in a few weeks , I assume a conversation as to whether I remain on drug or , a reduced dose . CT scan has shown reduction of disease with some bits growing , a controlled CA 125 ( 45 ) so I can foresee a watch and wait " but only time will tell .
This is a hasty post but by way of a catch up . How do I cope , everyone asks me ...
We got ill together . Our son was at Uni and giving up was never an option .
WE are very lucky to have had fabulous teams to care for us , from hospital porters , to cleaners , right up to Profs . I have dreadful anxieties as we all do , of painful death and dignity gone awol ....but in the face of adversity , I just wont let the buggers win !
I am also a team player and see myself as part of the solution . I dont do wacky foods and diets but am sensible .
AND I don't believe it's over until the fat lady sings !
My very best wishes to you all and apologies for having been away .