Hi -I had a scan after first 4 chemo..I suspect that some teams do review to make sure it's all working for you. Not something to worry about but it would have been better if someone had explained! xx L
I know the nurse said it's procedure , I said well it would have been nice if someone had told me !!! I feel that the whole situation hasn't been explained only the basics . It's the fine details that make you worry and I guess because they do it day in day out they become desensitised to your feelings and you just become another number .
I was thinking that because I'm only adjuvant chemotherapy and if my CA levels were really low I wouldn't need the full 6 carboplatin ? I've been NED since surgery in November and CA levels continue to drop so therefore why more chemo ? Maybe this will be the case I won't know until 20th when and if I see the consultant I've only met him once and seen the registrar the other times who I might add is rather dismissive of my questions ... thanks for your reply x
I was same as you stage 1 with NED after surgery! Cells were high grade so had to have chemo! Doc said to me that he would do 4/6 chemo would review after 4 and decide whether or not to do the last 2! I tolerated the chemo pretty well so he decided to do the last 2 for belts and braces as he put it!
Dx
PS: Should have said that my CA125 was 26 on diagnosis and went down to 6 second last Chemo. Haven't asked since as it was never above normal its not a good indicator for me. I am however having a 6 month review on the 11th April (one year after chemo finished) and my GP is going to have a CA125 done for me for that! For me once a year is enough!
Thankyou for this information this was what I was wondering . On diagnosis my CA was 47 3rd chemo 15 forgot to ask 4 th time . In my mind I'm wondering if this time my levels are really low will I have to make the decision to have the last 2 . That decision will be really hard because although I've tolerated the carboplatin with only nausea for around 7 days it's really affected me mentally and each cycle I've been really depressed and low crying etc . I'm fed up of feeling like that because I'm not that person . My head would say have the last 2 but my heart wouldn't be saying the same thing .
I know it's only 2 to go but I'd rather he say your having the next 2 I don't want the option because in my heart of hearts I think I would turn it down and watch & wait . It might sound crazy and I'm a nurse so should be gearing up for the next round but I've had enough xxx
I know exactly what you mean Chemo is not pleasant and prolonging it any more than is necessary is a difficult choice. My Chemo doc sort of gave me a choice but didn't really so I just bowed to his superior knowledge at the time! If your doc says their only doing it to make sure then I would suggest you lay all your cards on the table and tell them the impact it is having on you from a mental perspective and they may just suggest that 4 is enough!
When I went in for the "mid term" review I was hoping he might say 4 was enough! If I had been very sick he might have but I wasn't too bad so he said we would continue! I am finished Chemo one year on the 30th March and I have recovered well but it took a while to get to a point where I am happy with my energy levels in particular and my mood and perspective too and I still think there are some after effects but that's to be expected I suppose!
I wish you the best with your decision making its a hard one!
I feel more geared up for the meeting and glad that I asked on here because if I had gone in next week it would have been a total surprise and I would have been unprepared but at least I know sort of what to expect now so thankyou xx
Hi, I was diagnosed 1b, high grade serous and just finished 6 rounds of carbo/taxol. The final two were reduced by 20%. My last CA125 was 17. Having a scan next week. I imagine doctors treat each on an individual basis but if you feel unsure always best to ask more questions. Hope everything goes well.
My 3rd chemo my CA was 15 and I forgot to ask what number 4 was ( chemo brain) I'm only on carboplatin . I meet with consultant next week to decide , if I have to make a decision to have any more that's going to be hard because my head will say yes have all 6 but I'm so tired of the side effects and want my life back if you know what I mean xxx
I know it can be really hard going- a week after each treatment I said that's it , no more! I often thought that with chemo you might do it once but 6 times! It's counter intuitive to allow yourself to be pumped full of chemicals and to know that you'll feel rubbish shortly after.
All I can say it does feel like it goes in forever but it will come to an end.
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