Got Restaging scan results today...

[ricky23]

So there is spread to under arms...lymph nodes and some in stomach area. Nothing in major organs phew!! Ca125 was 175 2 weeks ago now 274 so not too bad. No cancer in my spine or bones so I'm lucky

Chemotherpy Carboplatin only starts tomorrow yuk!! Have asked for different anti sickness tablets as the sicknessc and constipation were absolutely evil. He said take laxatives for constipation.

He is very concerned re my spine I have multiple fractures....Osteoporosis and needs sorting. an op to cement my spine .

I am so worried about my spine and the cancer ..it never ends . But I'll be smiling tomorrow 1 down 5 to go and IF I complete this time a trip to the boat on the Thames that is a hotel...plus Jersey boys again... what an incentive.!!!

Thinking today of my Grandaughters friend who passed away due to cancer all her life ahead of her. Devastating and Cruel. x

[chrissapam]

Just keep going....you can cope and cementing the spine sounds a good idea...nothing is over till its over and just sometimes kids have so much to teach us....am sympathetic about the chemo! Chrisx

[LorettaMEmery]

So sorry to hear you have to have more chemo. I was badly affected by sickness and bowel issues on my first line with carboplatin and taxol and had to be taken off it for 6 weeks as I lost so much weight.

When the chemo resumed I was given a good antisickness called Emend. It did the trick. It might be good for you. I was on ondansatron which gave me awful constipation.

I too have recurrence now. My Ct 125 had shot up to 7000 +. My oncologist at my appointment said I did not want to know what it was - course I had to know. I could not leave with that in my head.

I restated chemo yesterday after having 5 litres of ascites removed from my abdomen on Thursday.

I am now just on carboplatin. Had steroids, ondansatron and Emend. My recurrence is throughout my abdomen but like yours not on any major organs.

I have had 5 lots of recurrence and chemo since being diagnosed in May 2014. Mainly nodules on peritoneum. Was NED for 12 months in 2014 them the dreaded recurrence.

I have to take laxido all the time for chronic constipation or I get totally blocked up

I wanted to wish you all the best for your new chemo and hope you can get the best meds available. I am sure they start you on the cheapest least effective drugs. I know mine were. If you are sick insist on something stronger which won't cause constriction.

This site is wonderful for support from ladies who have been there too. Just reading the posts daily has been a lifeline to me knowing I'm not alone with the bas****.

All the very best for the chemo. We'll be done when the summer comes. You will have your lovely boat trip to look forward to

Loretta x

[ricky23 in reply to LorettaMEmery]

Hi Is Laxido on prescription or can I buy it? Constipation was horrific last ime 9 days and couldn't go!! x

[LorettaMEmery in reply to ricky23]

Yes. You can get it on Presciption. I did anyway. It comes in sachets which you mix with 150ml of water. It is orange flavoured. Not pleasant to take but beats constipation always. Had a laugh on Satirday night when my daughter picked up my laxido instead of her gin and tonic. We all had such a laugh at the look on her face !!

Good luck with the constipation. I've had 2 sachets this morning. I dread constipation. Hate it x

Keep well xx

[ricky23 in reply to LorettaMEmery]

Thank you so much trying to get everything together so we are prepared this time!! Got lots of fruit juices. Fruit and veg . Fish fingers as for some reason it's like being pregnant....cravings lol xx

[gailhay]

I'm so sorry you are back on chemo again. Big virtual hug to you. And so sad when children go through it. I had bad constipation with the carbo taxol cycle but took ondansetrin which was brilliant for the constipation and pre empted the constipation by taken dulcolax the first one on the night of the chemo for 3 nights with each subsequent cycle and it worked wonders- no more constipation. Good luck and very best wishes Gail xx

[ricky23 in reply to gailhay]

Hi thanks Kerry you for your reply.. can I ask is Ondansetrin over the counter or prescription? x

[gailhay in reply to ricky23]

I have just re read my post! Obviously suffering from chemo brain!! I had ondansetron for nausea - only available on prescription. Was brilliant but made me very constipated so took the dulcolax for that. I started it on the evening of my chemo and it worked really well. Best wishes to you. Gail

[Cropcrop]

What a fabulous attitude you have, your strength and positivity are inspirational. Sending big encouraging hugs and lots of love ❤xx jane

[Lynne65]

Hope your treatment goes well. Keep focused on that incentive.

Big hugs 🤗

Lynne 💞

[minard]

Sending you loads of sympathy and support after this news, Ricky23. Yes, I too feel that keeping the cancer away from our vital organs has to be "a good thing". As for treatment, you've done it before, you can do it again. Just keep your focus on that London trip, and enjoy the warming of the spring days until then, with me x

[Microbabe]

So glad it's not In your major organs but having the spine problems as well you have a lot in your plate my love .... despite this you still have such a great sense of humour and right to admire... sending big hugs and best wishes for your treatment plan 🤗🤗

[tntknc]

Ricky23 I am sorry to hear about you're news but what I do love is your positive attitude and energy! What a great thing for you and anyone that reads your post! Keep it up and before you know it you will be enjoying your trip! I wish you an easy time and good health during this treatment and thank you for reminding us that a positive attitude is so important! Tracy

[ricky23]

Thank you!! Do you know what I feel lucky in the respect that it is relatively contained at the moment. started chemo yesterday so fingers crossed it does the job. Side effects so far headache and sweating. so not too bad but I'm realistic I know what is coming ha ha!! Hope you are well ? x