Yes, Hi Girls, I have been feeling so strange I couldn't post on here! it was not good news on Monday, it is all up and running and has finally got a grip on my liver and lungs and stomach. I think my onc was suprised when I asked what he could do for me, but he has offered Topotecan daily for 5 days every 3 weeks. I am waiting for the appointment in the post, I don't have much hope at the moment, the fight comes back in short bursts, I am in a lot of pain so I am using Oraphorm and I saw my Macmillan nurse on Tuesday she recommends Mst so will order that for me. She was very good and she will be happy to speak to my son as well, I hope I last till I can start the Totpotecan and looking forward to hearing any experiences on here with it, love to You all Diane xxx
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