For all the brave women (and their partners who love them) who sometimes feel there is no hope!!!! I was diagnosed with metastatic peritoneal carcinomatosis 3C OC with ascites 11/20/15. I have had primary chemo, interval debulking with radical open hysterectomy/salpingo oophorectomy/resected bladder, 14" of large colon removed/temp colostomy, splenectomy, omentumectomy, appendectomy, an ablated diaphragm, kidney tumors removed, intraperitoneal cisplatin/taxol chemo and dose dense carboplatin/paclitaxel (carbo/taxol) chemo.
Initially, I spent days googling my diagnosis. It was devastating. I could find no evidence of survival for my stage of disease-- so for all the newly diagnosed women, please understand that the data you find on the internet will not help you. Most of it is out of date. It's good to learn about your disease, but important to understand that what you need is the latest, most recent studies-- which can frequently be found on BioMedical Publications.
Most importantly, find the best gynecologic oncologist surgeon available. The quality of your surgery is a predictor of your outcome.
I completed chemo Aug. 10, 2016 and had a CAT scan that showed no evidence of cancer, I now have a low normal CA 125 level and am currently NED for 7 months.
On Oct, 24, 2016 I had surgery to reconnect my colon . It was a challenging ostomy takedown as many adhesions had formed which adhered my remaining colon to other organs. My surgeon prevailed, however, and the anastomosis has been successful. The lingering result, being minus 14" of my sigmoid colon, is that I now have bowel movements 8-12 times a day. This is not interfering with my life and I much prefer to use my natural plumbing over the ostomy bag, which did have a serious effect on my usual activities. The 6 biopsies taken during surgery showed no evidence of malignancy. I am currently in pathological remission.
Initially my 3C OC Diagnosis was dire. Ten years ago it would probably have been termed "INOPERABLE". I am now fine. I feel fantastic. If this disease reoccurs I will be ready to fight it again. Like all of us, I pray that I am CURED. I have now been given more TIME to live my life, to make a positive difference in someone else' life and to enjoy my beloved friends and family. So, please, know there is help. Know that it's worth fighting hard to be given more time on the planet.
With love for all of you. This journey is unpredictable and we need each other to stay strong. Tesla