Experiences with

Splenectomy

hi all I’m 68 male had splenectomy in 2014 started hydroxycarbamide in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily Hydroxycarbamide I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin

I had to wait for a multidisciplinary conference to decide what type of cyst it is, because I had both traits of a pseudocyst and a Mucinous cyst (my Amylase is >80,000, but my CEA number was 48, in a grey area) so they are treating it as mucinous cyst and doing a distal pancreatectomy, splenectomy,

My battle has been mental , compared with lots of you ive had far less treatment .. major debulking with splenectomy , Avastin and now olaparib and my ca125 and Ct ‘s have been fine ….

She has had a splenectomy which normally increase the white cell count, as there isn't a reserve of white cells stored in the spleen. Here is an excerpt from the story.

After splenectomy he hadn't faced any health issues. It's been a year after the surgery. Nowadays he is not getting enough sleep. Can somebody help me with tackling this lack of sleep. Also please advice me on the diet plan.and how to make him back to a healthy life

Consultant advises watch and wait and does not advise splenectomy. CA125 76, no symptoms. Just wondering if anyone out there has lesions in their spleen and what treatment if any they have had. I gather it is unusual for it to recur in the spleen.

This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a day off. He is not eating and is very tired. I'm sure they're linked he isn't. Any pointers?

At 10, I had a splenectomy. At 13, my tonsils and adenoids were removed. At 17, I broke my back and both feet in an accident unrelated to thalassemia. At 18, my doctor said I was a miracle, alive without treatment despite a hemoglobin of 6.9 (normal is 12 to 14 for women).

Hello, Does anyone have any experience of why anyone with Polycythemia Vera and Portal Vein Thrombosis, with a 22cm spleen would be offered a partial splenectomy, a spleen embolisation through the groin? Has anyone been through this?

After a tricky first year with AIHA (and I was worried the end was close at one stage), I had a splenectomy in Jan 2013 to stop the AIHA. Since then I have had no sign of haemolysis/AIHA. Long may that continue!

., Sjogrens Syndrome and had a Splenectomy 13 years ago for ITP does anyone know if this meets the criteria for VAT exemption on certain goods such as a Revitive Circulation Booster. Thank you.

It has not all been easy, I was W&W for 6 years with a steady increase in WBC numbers, in 98 I had a splenectomy due to it being severely enlarged.

Splenectomy, along with the tail of my pancreas, then probably some more chemo (yay!!) Thank goodness my CA125 is an indicator as I feel amazing with no symptoms at all.

Has anyone else had a similar experience after having a splenectomy.? Do you have any recommendation as to what has helped increase your platelets. Thank you in advance.

Hi everyone, I am really struggling at the moment, diagnosed with ET JAK + in 2016, currently on clopidogrel and Hydroxy, splenectomy and small bowel resection due to splenic infarct and inflammatory mass in bowel.

Finally got the husband home after 10 days in the hospital for his ruptured spleen. Seems to be getting along ok.. bladder was lazy so had to have a Foley catheter and of course has a JP drain in his abdomen. Got the call from pathology today and they said that there were mantle cells detected in the

I was diagnosed with ET JAK2 positive in 2016, my platelets have never really been higher than 550 however I was diagnosed after having a splenic infarct, sine then have had a splenectomy and small bowel resection due to inflammatory cyst in my bowel.

I am thinking of having scar revision surgery for a lateral abdomen scar post emergency splenectomy. I’m told the scar is “pretty neat” but as a young Indian female. It is extremely difficult to overcome, give the transition dress shows the midriff.

Oh, regarding splenectomy, I'm afraid like a mad dog. You don't know how much I hate operations and doing this gamble. In the past couple of months after getting a count of 30k two months in a row, the stress was really high and I check my mouth frequently ever since.

FWIW I had a splenectomy 3 weeks ago and am now recovering well thankyou. My surgeon told me that my spleen had been the size of a small baby, it had weighed 2.5 kg. I’ll ask him for an actual size (mm) next time I see him.