I was diagnosed in June 2012, stage 3c, unfortunately the cancer had spread to the uterus, tubes and the bowel, it was even in the appendix. I had a full hysterectomy plus one third of the large bowel was removed plus about 25 cm of the snall intestine and I had an ileostomy bag. This was reversed eight months later.
I had eight sessions of carboplatin and taxil. The cancer recurred last July , I had scattered nodules throughout the abdominal area, on the surface of the liver and I had fluid at the base of my right lung, several lymph nodes were involved including mammary nodes and two near my clavicle.
I have now had six months of chemo ( carboplatin and caelyx) and seven months of caelyx.
I am due for another pet scan on the 25th August so will find out whether there has been any further reduction of the cancers ( after the six months of chemo there was a reduction in some of the tumours
and the fluid I had in the right lung had gone) It looks as though I am going to have to continue with the maintenance chemo, the oncologist has said he has had patients living two and three years on maintenance chemo.
Earlier this year I had severe headaches a few days after having the caelyx with pain in the sinuses, aching eyes and teeth but thankfully that has lessened, sometimes my voice is affected and also a 'drippy' nose plus sore eyes every morning. Thankfully not too much trouble with nausea and the mouth ulcers haven't been so bad the last couple of months.
Anyone else on maintenance chemo ?