Experiences with

Osteoporosis

I was diagnosed with Osteopenia and Osteoporosis in 2022. I have had several appointments with a consultant who has now discharged me saying there is nothing they can do.

Has anyone heard anything about the Root Cause Protocol for osteoporosis? It has you stop taking calcium supplements and Vitamin D and instead getting these from food. A friend has osteoporosis and her DEXA scans have increased twice with the latest being a 6.6 increase in her lumbar spine.

Hi everyone, I have severe osteoporosis, and was told that I need to start daily Forteo injections for 2 years to build up my bone. Has anyone here experienced adverse effects on RLS due to osteoporosis meds? Thanks for any information you may care to share!

Was diagnosed with osteoporosis just over 5years ago, have completed5 a year course of alendronic acid with no problems ,but my osteoporosis is apparently very severe, although I am OK apart from occasional spinal fractures.......

My surgeon told me that the operation should also halt my osteoporosis. Has anyone else had this advice given to them?

Does that mean I only have osteoporosis in my hip or is it an indication of bone health across my body?

Like many, I used to think that issues like osteoporosis only affected older people, but recent experiences have changed my perspective.

I was diagnosed with severe osteoporosis earlier this year but the process for approving my medication has been a long one. I’m about to start Teriparatide injections and am quite anxious about it.

I was diagnosed with 5 disc fractures and osteoporosis beginning of last year and struggle with getting around and pain.

The Clinical Team at the ROS Royal Osteoporosis Society We’re the Royal Osteoporosis Society – the UK’s largest national charity dedicated to improving bone health and beating osteoporosis. And we’re here for everyone living with osteoporosis or supporting someone.

In this Royal Osteoporosis Society BoneMatters session, specialist nurses Julia and Sarah explain what it means if you have been told you have osteoporosis and what the future holds. They look at the changes happening inside bones and how a diagnosis of osteoporosis can have different meanings.

I was lucky enough to have a diagnosis of osteoporosis before I broke anything. I started taking alendronic acid, But I spent the next few months terrified that every pain meant a fracture.

A couple of months ago I was diagnosed with osteoporosis after suffering acute back pain while jogging. An MRI showed several vertebral fractures and a DEXA confirmed my diagnosis. Blood tests showed no underlying metabolic causes, so I'm just unlucky I guess.

https://theros.org.uk/blog/10-top-tips-for-travelling-abroad-with-osteoporosis-and-related-fractures/#:~:text=Watch%20the%20water,water%20for%20a%20short%20period.

Which K2 supplement is best for osteoporosis? Do I need to take it? I already take Alendronic Acid and Accrete. I do lots of weight bearing exercises and walk five miles wearing a weighted vest most days.

My cousin has asked me if she should go ahead and have the infusion ( she can't take AA). She's very nervous about possible side effects.Her last T-scores were Spine -4.5 Hips-3.7 She's small and thin. Doesn't want to bend over and get a fracture in her spine. She's 76 and very active Anyone had this

T scores come in as L1 =1.9 and L2 = 0.1 All the rest come in between -0.2 and -0.8 Have had a message to say make appointment to see GP re Osteoporosis. Are these results I should be really worried about? Apart from the first two the rest dont seem to me to be terribly high .

I have GCA and osteoporosis, currently taking 1.5 mg prednisone, Actemra and Boniva. My front teeth have been slowly moving inward, and it was suggested to have Invisalign (clear retainer like braces). The treatment should take 6 months.

It is a new-ish biologic med for osteoporosis given to people at high risk of breaking bones. It doesn't fix the broken bones but helps prevent it happening again.

This as a good podcast for those of us taking vitamin D/calcium and with osteoporosis. https://podcasts.apple.com/gb/podcast/zoe-science-nutrition/id1611216298?i=1000652853315