Advice

[19smp59]

I have recently been diagnosed with Osteoporosis in my spine & Osteopenia in hips after being on AdcalD3 for over 10 years. A recent xray shows no compression fractures but I have stenosis & end plate sclerosis in the majority of my spine. GP has advised that medication is only prescribed if Osteoporosis is in hip. She has written for advice & guidance but NICE guidelines seem to contradict what she's saying. I can't afford for my spine to get any worse as mobility is already impacted & pain can be really quite bad. I am doing exercises from the ROS website but wonder if anyone has any advice. My scored in spine were below -2.5.

[Purplemallu]

I've just Googled it - this is what came up ..."No, osteoporosis medication isn't only prescribed for osteoporosis in the hips; it's prescribed to address the condition and reduce fracture risk in any bones, including the spine and other areas, based on individual risk factors and bone density results. "

I hope you manage to get some better help & advice.

[19smp59]

Thank you

[Armagnac]

I’m not a doctor but I’ve never heard anything so stupid. Pester GP (preferably another one) to refer you to a rheumatologist. Good luck.

[19smp59 in reply to Armagnac]

Thank you. I certainly will.

[dcdream]

that's insane. Not true at all. Maybe time to see another doctor.

[Fatpidgeon]

Hi, having a diagnosis of Osteoporosis after being on vitamin D and calcium for 10 years must have been hugely disappointing.

Regarding your GP comments. This prescribing policy is something I am unaware of and cannot see any logic behind it. To me, it seems wrong, but it could be local prescribing guidelines. May I suggest you ask the Ros Nurse about what your GP said. Getting the appropriate medical treatment is important.

Have you seen your Dexa Report yourself? When I had my first DEXA scan and was diagnosed with Osteoporosis, the report advised the GP about excluding other causes of osteoporosis (myeloma, hyperparathyroidism, caealic disease, low vitamin D etc) and advised on appropriate treatment e.g. Aledronic Acid, Vitamin D 800Iu and Calcium supplements 800mg. I downloaded a copy of the report for myself. Do get these other causes excluded.

[19smp59 in reply to Fatpidgeon]

Thank you for this. I'm going to speak to the Helpline. I do have a copy of my report as paid privately. It is thought that as I have Psoriatic arthritis this is the cause of my Osteoporosis

[Fatpidgeon in reply to 19smp59]

That's very interesting, I haven't heard that before. Learn something new everyday!

[ROSModerator Partner]

Hi 19smp59 ,

A very warm welcome to our community – thank you for joining us! 😊

It’s lovely to hear that you’ve already been exploring some of the resources on our website. If it’s helpful, we also have information about medicines available here: theros.org.uk/information-a...

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And just so you know, our helpline is run by specialist nurses who’d be more than happy to talk things through with you if you’d like some extra support: theros.org.uk/information-a...

I hope this feels helpful at the moment.

Wishing you all the very best,

Lulu

ROS Moderator

[19smp59 in reply to ROSModerator]

Thank you