I feel frustrated there are so many young people with this disease but there seems little awareness. There also doesn't seem to be too many young people on sites like this it makes you feel pretty alone. Also I wish I had got this awful disease in my 50's rather than when I was 20 (well I'd rather not have it at all). It's made life so challenging from such a young age and so I think there is a difference for someone getting this at an older age than someone much younger. For me it's the worry of having been on drugs for so long, the loss of movement in some of my joints making it difficult to do so many things like shopping or going on holiday. I feel very different to my friends who really have no idea. I know we all support each other and I am grateful just feel very alone having had this for so long and so young and not knowing why. Sorry this is probably more of a blog and a moan x
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