I'm sure that many of you have felt like this during the years. I was signposted to this site by the Consulant and nurse after being diagnosed with seronegative inflammatory arthritis. As many of you know was placed straight on PRED and MTX, then LEF and HYDRXY, now just PRED and HYDRXY. Other things have now emerged with Sicca symptoms, an intermittent swollen lymph gland in the neck and recently a photosensitive rashes on both cheeks after going hatless for short periods on a very cloudy days. Although ANA +ve I don't have any other antibodies to direct me specifically into a box. Feel like I am staring blankly at the PIX-N-MIX and maybe that's where I will stay. Undifferentiated connective tissue disease has been mentioned but not definite.
Searched UCTD in the search engine here and main posts are with the LUPUS site - lovely folk too.
So, left wondering where I belong and am so aware that many of you are enduring far more joint pains and erosions than I and you might rather I didn't prattle on with this forum. Getting the right diagnosis is rather a lonely place really, isn't it. Am on the right meds at present (HYD covers a lot of sins I'm discovering). It's that very human thing of not coping so well with uncertainty. Sound familiar? Many, many thanks to all of you wonderful people who have supported me so much since I joined. xx
Well your with anyone who can give you support! Until you get a label if you need one then stick with us too lol!
Ah thank you. You have all certainly been supportive and that has got me through some tricky moments.. Only wishing for a label so that I understand more, get some peace of mine I reckon. x
Yes I bet and that's the problem it can take a little while. I always wish there was a magic blood test to say its this or that and this or that pill will cure you!
Ah, a like minded person. Yes, it's the mind games that can become all too intrusive. I wish I was more resilient when it comes to uncertainty. One step at a time has to be my new mantra. x
Mine is patience is a virtue in the RA game!