Well if you remember in my quest to e my own "champion " of my own illness!! I sat outside my poor Rheumies door until he finished a meeting and demanded i see him when i got that awful flare two weeks ago. Well the steroid jab he gave me has been amazing and I managed to get away for the half term and had a lovely time, used sticks and a motorised scooter at one point cos i WAS TIRED BUT STILL did IT!!
Anyway he said he would see me at10 am on his first day back after his holiday, his wife must hate me as I din't know his holiday started after this meeting and he's faced with me outside the door in floods of tears !!
So I was a little embarrassed to see him yesterday all my brave "championess" had gone by then!!! However I needn't have worried. I got the best 10 mins of advice I have had since I got this illness 18 month ago! He swapped my Enbrel to Humira, he increased my arava and said something strange but lovely and reassuring. He said I had a really difficult to treat type of RA and said " this disease does not only affect the joints, it affect your whole body and your soul" looking me straight in the eye, and for that moment I knew he really understood everything. He promised me he would not give up until I was comfortable and that i would not be allowed to end up crippled like the other members of the family had in the past as the treatments are so much better now. wow!!
I know these are big statements but it seemed they were heartfelt and I am now reassured that they are trying everything for me to help with this disease.
So I trust him more but I will still telephone and stand outside the door if I ever need to again cos the results of that have been so good!!!
Hope u all keeping warm and out of the rain. Lots of love