Hello you all!
Been a while cos everything has been hard recently. So last time i said i was still not controlled with the RA and getting retired. So that has just about gone through but of course as is the NHS they are quibbling over a couple of days pay (which i Know I worked) even though for years i worked over hours and extra days and night and on call for nought, ah well. Having a retirement lunch on Thursday so it will be nice to say goodbye properly as I was dragged to the GP and never cam back a year ago!!
So I have had very bad flare up, and got so desperate I went to the consultant and waited outside his office till he came out of a meeting and demanded he see me before he went home!! I know I cant believe i did it either.
But I got an IMMEDIATE steroid injection and for the first time i have had about a week with pain about 4/5 instead of 8/9. They had taken me of my Enbrel and Arava as there has been (if you remember) a lot of problems with my neck and shoulders and I had an mri scan. He looked at the results and was worried! Told me I would have to see Neurosurgeon quickly! So that went ahead and i have 4 discs burst, lots of nerve involvement, compression of the spine and pooling of CSF mmm....
So I got sick of waiting around to get neuro appointment ( this is urgent?) so I paid £300 to see one privately and what a difference. I was worried as I had been told i might black out so wasn't driving, he said I would not so i could drive, he told me my RA is too unstable so he would not operate immediately but I will need a closed body mri scan on the whole spine, i freaked off course...dont like them, but he said i could have a anesthetic, thankfully. He kept asking do I have any more questions and i was in half an hour wow!! If i won the lottery i know what i would spend it on now, i thought he was gonna make me tea the way i was getting treated!!!!!
so I'm a bit in Limbo waiting for the RA to settle, waiting on the operation, waiting for an MRI scan but positively i got morphine tablets..brilliant, steroids brilliant, can drive brilliant ..and seeing Rheumy who has now REALLY seen me and wants to see me the day he's back from his hols at the beginning of June. So hopefully it will all come together at last.
Sorry I am gong on a bit but when I couldn't type it was hard to read everything and not be offering my works of wisdom rofl
Enjoy the good weather whilst its here, it really makes me more ocmfortable.