Hi Everyone,
I have just returned to NRAS (they helped me 15 years ago when I was first diagnosed and living abroad). I have recently been diagnosed with bronchiectasis and 6 weeks later still have not received any further information, advice or support. The phone call to NRAS was like getting a comfort blanket thrown around me and helped me considerably.
May I take this opportunity to wish you all a Safe and Happy Christmas and a healthy New Year.
Gentle Hugs to you all.
I'm sorry you've been diagnosed with bronchiectasis, not the best start. pleased the helpline were so helpful though.
A happy Christmas to you too. Can I ask, what was your previous username?
I cannot remember - paperwork had to be sorted before I returned to the UK and I guess it got lost then. I did manage to get to two of the NRAS events, one in Norwich and the other was up in the midlands somewhere. (these were about 4 years ago I think). I have heard nothing since diagnosed about 6 weeks ago (only by receiving an internal copy letter from Rheumatology to a Respiratory Consultant asking for advice) so have had no support and I was scared. I then had to go to give a blood test at a MacMillan Unit and caught Covid as a result so when I spoke to Rosie at NRAS her help was something really supportive and special. I hope you have a good Christmas. Thank you for your reply
I wish you a safe and happy Christmas and a healthy New Year also ageddancer.
Thank you. Keep safe, keep smiling and be Happy.
Merry Christmas to you as well. xxxx
I hope you have a happy Christmas. I have RA, diagnosed in 2004, and bronchiecstasis, diagnosed in 2012. If you go on the British Lung Foundation page, there are people there who have bronchiecstasis.
Good Morning and a Happy Christmas - all the replies I have replied make you realise you are not alone and the support is so heartwarming. I will check the other site you mentioned.
Have a good Christmas and know how appreciated you are. Hugs S
NRAS , a comfort blanket what a great way to describe it. Have the best Christmas that you are able to have.
Suddenly I have found friends, support and welcome. Thank you ,
keep smiling and enjoy what you have. Big Hugs S
Skydive - Well I am 46 today and am celebrating by signing up to do the skydive on 12 May to raise funds for NRAS!
So long, farewell and thank you!
Health and Happiness to You All
WE NEED YOUR TIPS AND IDEAS!
