Hi all,
Just had an appt with an orthopaedic surgeon. He says my knees are not that bad so is unwilling to look at the possibility of tkr. I am in considerable pain all day every day for 4 years now, been labeled as RA but that has changed to unexplained seronegative negative poly inflammatory arthropothy. Huge mouthful. I have been on tocilizumab for 2 years now and getting a little depressed that the Dr's have not figured this out yet. I have defects on the medial condyle of both femurs which cause stiction of both knees. My range of motion has decreased over the last year, I walk more like a penguin as it is less painful than using my knees. I get my bloodwork done every 3-4 weeks as I get the tocilizumab infusion monthly.
This drug has been keeping my crp nice and low, however I am still super fatigued, and now my platelet count is way down again.
Have another infusion tomorrow morning and an appt with the rheumatologist as well. Hopefully there will be some answers.
To top it all off, my disability insurance company is trying to get me off their payroll. Too much stress when one is trying everything to get healthy and get back to work. My employer has a duty to accommodate yet they seem scared to implement anything. I have made many buisness cases of what I am capable of doing and they all seem to have fallen on deaf ears.
Any advice from you folk on how to persuade an employer to make accommodations would be well received.
Cheers
Scott in Canada