Leflunomide: Hi Guys, I know this has been asked over... - NRAS

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Leflunomide

VeronicaF
VeronicaF
12 Replies

Hi Guys, I know this has been asked over and other again

but how did you fare on Leflunomide?

how was your weight? how was your stomach?

I have tried the S one but felt I couldn't breath so took myself off it just after a week, it seemed fine at first but on the 6 day I was feeling bad, rash too.

so have had a break from going on anything else but I am sick of the pain and its coming in more new places.

so would love to hear how you fared on it, as my stomach couldn't cope with much more

I am watching what I eat and I do notice when I am not careful what I eat, although I still can't pin point what in foods is making it worse.

if I stick to bland boring foods I am not too bad

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premierscfc

I've been on Leflunomide a couple of times and I get my weight checked every time I go to monitor clinic. I have been told it can cause weight loss but I've never been that lucky😔

I get no side effects whatsoever with it luckilly.

Hope it works for you!

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VeronicaF

have you been on anything else premierscfc? have you been that lucky re no side effects on anything else too? or just this one?

1 like
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premierscfc

Just this one everything else I been on have caused at least one side effect, some I could cope with and some I couldn't.

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VeronicaF

how is your stomach with them premierscfc ?

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AgedCrone

I found it took away my appetite completely.....lost,15 kgs which I could ill afford.......& it didn't help the RA.

But a lot of people do well on it for years.

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premierscfc

Fine always has been on them, I on Lef with meth and abatacept (biologic).

Hope it helps you.

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cathie

I’ve been on it for more than a year and no adverse effects so far. Methotrexate damaged my liver but I took it for nearly ten years and felt much worse when I stopped

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VeronicaF

has it helped your pain cathie, have you been on anything else?

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Bx12

Hi, Ive been on Lefl. for about five years. Its been very good, no serious side effects. much better than Methot. that made me feel dreadful. The only thing I would say is that on its own it probably hasn't quite controlled my RA enough, so now going through the next process of working out what will be best in the future.

Hope it works for you.

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sjhewitt42

Hi I only took for 2 months as the side effects were similar to Meth for me. Lots of nausea, no appetite and just generally felt hungover all the time. I hope it works for you xxx

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lesliebird

Hiya, I was on it for 5-6 weeks and was so unwell, from stomach problems like no appetite to constant diarrhea, it was awful so I stopped it. I'm now back on weekly 25mg methotrexate injection, 4 sulphasalazine daily, 2 hydroxychloroquine daily, folic acid and my levothyroxine, quite a concoction but I'm actually feeling much better on these drugs. Pain is minimal and I can live quite normally, thank goodness. Hope this helps.

Judith x

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VeronicaF

I found this and found it helpful too

patientslikeme.com/treatmen...

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