Unbelievable.

[allanah]

This has probably been my best Xmas in 7 years. I'm not saying that to annoy folks. I'm telling you to give those of you who haven't found the right drugs yet that when you do things will be so much better!

I managed to cook for 8 people for four days plus a 21st party without killing myself, with help from my friends and family and only having painkillers at night.

Tcz plaquenil and arava seem to suit me well !!

So when it comes I hope next year sees you " finding the one", and I don't mean partner lol😂😂😂😂🤗🤗

Santa came and had the mince pie and whisky but the reindeer left some glittery carrots!

Happy New year to you all xx

[Doughnut61]

Great news xx long may it last ❤️

[allanah in reply to Doughnut61]

Fingers crossed .... still can't do that thougn!!

[farm123]

I just wish it was easier and quicker to find the right combination. Farm

[allanah in reply to farm123]

Me too . Nearly 7 years. Wish there was a test to suggest best treatment x

[Hidden in reply to farm123]

Probably is farm, one of nurses at recent patient course said the pharmaceuticals donot like to say what their drug is actually targeting due to patent issues, great eh? However that still leaves question of why we all respond differently to different drugs, surely it's the same disease? Mystery.

[allanah in reply to Hidden]

Yes. Money money money

[miss]

So pleased your doning so well. It's so good to hear your new drugs are working well for you.

I also have different drugs had them since February. What a difference it has made to me. Even started horse riding again . Had a fall last week hey and no issues! Can't believe it.

Benepali is my drug.

Xx

[allanah in reply to miss]

Fantastic! Enjoy your horses x

[HevJ in reply to miss]

Hello

That’s fabulous.... how long have you been on Benepali? And how long did it take to work? They are starting me on it alongside methotrexate. Do you suffer side affects?

I really need something.... the past 18 months have been awful - I be always been so in to exercise and competition and I can do nothing! I am hoping Benepali will be my turning point... good to hear it’s working for you.

Hev x

[miss in reply to HevJ]

Hi hev I found a difference within the first month. Just felt like me again. Took around 3/4 month's before I started the horse riding.

Really hope it works well for you. Let's us all know how it goes. X

[HevJ in reply to miss]

Thanks for that... I just want it delivered and started 😁

Enjoy those horses x

[miss in reply to HevJ]

Thanks. X

[sylvi]

Oh darling i am so glad you had a lovely time.xxxx

[TTCC]

Thank you for sharing it is this hope that keeps me going.

[allanah in reply to TTCC]

My RA was so severe i was on 1000 mg steroid infusions! I'm so pleased. Keep trying x

[popsmith1874]

Great to hear your doing well xxx

[allanah in reply to popsmith1874]

Yes me too. If Of course still have some bad days but now more good than bad x

[LizzieR]

Thank you for sharing! Maybe my miracle drug is out there... Maybe it's the one I've just started. Really pleased for you x

[allanah in reply to LizzieR]

Hope so Lizzie!

[Hels1989]

Your giving me hope honey as I’m riding out a flare due to a bad cold xx

[allanah in reply to Hels1989]

Oh no. My hubby is in bed with it too...so I'm avoiding lol!!

[Jora]

So happy for you. Perhaps the secret is glittery carrots!

Happy New Year, hoping that your drug cocktail continues to work. J x

[allanah in reply to Jora]

Thanks lovely x

[Ruth12345]

Such FAB news. Thanka for sharing 🙌☺

[allanah in reply to Ruth12345]

Thanks xxx

[amanda-dunmow]

Oh, that's lovely news!

I have been on mex and sulphasalazine approx 3 years starting with one then the other and then both which seemed to do the trick. Since March I have been on a downward cycle which started with bursitis in my left shoulder, nine months on and still my shoulder has not been sorted due to the long waits in between appointments and waiting to see if the steroid injections take effect. I have been to see the rheumy nurse but can't see the consultant again till next March. I have also been backwards and forwards to the Drs to try and find some pain relief which reduces the pain but does not make me into a zombie.

Really looking forward to March but also anxious of the consultant increasing the mex by one tablet and leaving me in limbo for another year.

What do you guys report to your consultants which makes them take notice?

Amanda

[allanah in reply to amanda-dunmow]

Truthfully .....i took my husband. He spoke man to man..... now i know thats a really sexist rhibg but since then my rheumy sat up and listened! And we have a great relationship now .

Take someone with you that will tell them how it affects the whole family.

Also just keep ringing the helplines as you get seen quicker I found. You have to be your own advocate in this game and if you don't keep telling them that the steroid they have you or pull they have you doesn't work they presume it has!

Perseverance and patience!

[farm123 in reply to allanah]

My OH would always come with me when things were bad whereas I would go on my own when 'stable' - my rheumy nurses noticed and commented on it. Not sure which of the kids to take now if necessary - I suppose one of the ones still at home as they see more.

[Gnarli in reply to farm123]

Chin up, Farm, and warm hugs

J

[Terri1020]

Glad that you are feeling good. Happy New Year!

[Terri1020]

Glad to hear you are feeling good! Happy New Year!

[allanah in reply to Terri1020]

And a great one to you too

[Gnarli]

Thank you so much for sharing. It gives me hope

J