Pip: Hi I was diagnosed with rheumatoid arthritis in my... - NRAS

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Babybaps44 profile image
34 Replies

Hi I was diagnosed with rheumatoid arthritis in my feet wrists arms and ribs last year and have fibromyalgia I was told in September to put in for pip I got turned down I then got turned down a second time I appealed as had no points on either I used to work 32 hrs cleaning supervisor I now do 19 cleaning and 6 office I came out with 5 points and 4 for mobility as this all went back to last December and not up to July was told it's because I worked 32 hrs I struggled that's why I cut my hours.i cannot afford to give up work am applying for new jobs but getting no where when I mention what I got I can reapply for pip any advice anyone? photo enclosed when I finish work due to have steroid injections 4th aug anyone had this? Can I walk after? Thanks mandy

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34 Replies
trish1957 profile image
trish1957

Hi you can appeal the decision and go to a tribunal citizen advice will help you or ring NRAS. You can get pip regardless of your work situation.

Good luck

Trish

Babybaps44 profile image
Babybaps44 in reply to trish1957

Hi trish thanks for your reply sorry I probably didn't explain well enough it was the tribunal I lost last week cab are helping me thanks again

trish1957 profile image
trish1957 in reply to Babybaps44

I'm sorry about that.

Best of luck and I hope you get sorted.

Trish

BoneyC profile image
BoneyC in reply to trish1957

It's true you can work and be awarded PIP. However, read the criteria and points scoring to understand where you might gain or lose points. Physically demanding work might be viewed more negatively, as opposed to a sedentary office job, think about the duties your job involves. Consider any adaptions that might have been made for you at work etc. etc. By far the best advice is on Benefits & Work website. Good luck.

Eiram50 profile image
Eiram50

I agree with Trish. I work full time and was awarded high rate of both care and mobility.

Babybaps44 profile image
Babybaps44 in reply to Eiram50

Thanks I don't think I worded it right they said at the tribunal that due to working 32 hours last December I am classed as having physical job and can't get it it's so furstrating Thankyou for reply

Eiram50 profile image
Eiram50 in reply to Babybaps44

If I were you I'd take some advice. NRAS have lots to offer regarding PIP and you can approach CAB too.

Additionally , there are many people on this site who have experienced the process and will be able to offer support and good advice.

Don't give up. Best of luck with things.

Marie

Babybaps44 profile image
Babybaps44 in reply to Eiram50

Thanks Marie it's so nice not to feel alone thanks

Eiram50 profile image
Eiram50 in reply to Babybaps44

Always here 😀

Selbel profile image
Selbel in reply to Babybaps44

When I've done the quick test to see if I can apply I fail as can walk so far and dress myself, a friend of mine has applied I'm going to see how he gets on? I also work so it seems whether you work or not you can still get pip?xx

Babybaps44 profile image
Babybaps44 in reply to Selbel

Yes o know people who work and get it they told me if I didn't have physical job I would score more points I just know my job is too physical but I could not be out of work thanks selves x

Babybaps44 profile image
Babybaps44 in reply to Eiram50

Sorry to be nosey have you same condition as me and what do you do for living I keep applying for jobs and turned down I want to work on m not giving up

Eiram50 profile image
Eiram50 in reply to Babybaps44

Not nosey at all. I have ankylosing spondylitis and RA. I was diagnosed about 3 years ago. It is particularly aggressive and proving difficult to get under control. In the past 2 years I've had both hips replaced, both knees replaced and surgery on feet. I'm now awaiting elbow replacements.

Soon to be all dancing and singing!!

I work as a children and families social worker in a busy practice team. I'm fortunate that work have been incredibly supportive from the start.

Marie

Babybaps44 profile image
Babybaps44 in reply to Eiram50

Oh bless you that sounds exciting job the only good things are my children are grown up I have a partner of 29 years who is very supportive and 17 years ago I had thyroid cancer so in my head I just think this could be worse I just want to work x

Eiram50 profile image
Eiram50 in reply to Babybaps44

You've certainly been through it. Good to hear you've got a great support in your partner. I've come to realise how we need this .

It's a great job but highly stressful and challenging and like you , I'd hate not to be able to continue doing it.

However, it's that paving yourself thing, isn't it? I know I'm unlikely to be able to continue full time for too much longer but I'll make that decision when the time comes .

I guess that's the crux of the matter maybe- it's having the ability to choose . Very often this disease robs us of this and we find ourselves with limited choices, particularly in relation to our work ?

It's a difficult one

Babybaps44 profile image
Babybaps44 in reply to Eiram50

Yes it's very sad I can't say I love my job I have been there 12 years I have waned a change for a while really I'm trying to be positive and think that it's for a reason and I must try move on had a small business just before the cancer so there is always a option there not that I made much money thanks for the char x

Babybaps44 profile image
Babybaps44 in reply to Eiram50

Is it rheumatoid in your feet?

Eiram50 profile image
Eiram50 in reply to Babybaps44

Yes hands and feet. Quite a lot of damage to both. My youngest daughter aptly described my fingers as looking like knick knacks ( crisps!)

Take care

Damaged profile image
Damaged

That just looks so painfull 😧

Babybaps44 profile image
Babybaps44 in reply to Damaged

Yes it is they both like it got see someone today x

Sancut profile image
Sancut

Hi, I've had steroid injection in wrists, back, thighs, not painful to have, could walk fine after back ones, ones in wrists had local anaesthetic in them, so couldn't really move them for a.while, so I d check with gp prior to having them. All helped with my conditions, in fact at pain clinic thus afternoon regarding possibility of more. I hope yours are successful and help you cope with t h a little less pain. REgards Sandra x

Babybaps44 profile image
Babybaps44 in reply to Sancut

Thankyou sandra and for your reply x

Lisazs profile image
Lisazs

I had a steroid into my ankle last year and was told to rest it for 48 hours afterwards. Best of luck with it all.

helenlw7 profile image
helenlw7

I had a steroid injection on my left ankle in March. I was a day case - it was done over an x-ray machine or similar. I was discharged about half an hour after I was back on the ward and was able to walk normally afterwards although my ankle was a bit painful at the injection site.

Jackadoodle profile image
Jackadoodle

Hi, have you seen your Rheumatology Consultant with regards to your condition? The medication supplied is fantastic which should then enable you to control your condition and go about your business pain free.

Matilda_1922 profile image
Matilda_1922

I applied for PIP soon after diagnosis last year but was turned down. After talking with other people I reapplied. I have a physical job as I do quite a lot of walking. I reduced my hours from 37.5 hours to 22.5 hours 4 months after returning to work following long term sick.

On the second application I was again turned down but with the help of CAB I was granted the reduced rate.

Just persevere and get the support of CAB and NRAS.

Good luck

Babybaps44 profile image
Babybaps44 in reply to Matilda_1922

Thankyou I am going to reapply thanks for your message x

The problem with PIP is it is based mainly upon the results of the physical problems caused by your illness, you might want to follow my posts, but by having and keeping a physically demanding job you will be unlikely to get enough points.

Reading my posts will illustrate what I went through, twice, adding insult to injury I got my final award base upon evidence that was kept from me and the tribunal by the DWP the first time round and past the legal deadline to take action. Moral of that story is to never ever trust the DWP.

I know what it is like to try and keep going on basic jobseekers when you are unwell, the DWP will pursue you like a criminal trying to force you into any job you cannot actually do anway.

You may have to consider, if you can, being laid off by your employer, DON'T ever resign and existing on JSA with your new PIP claim in asap. When it gets awarded, even after a tribunal, it is backdated.

Babybaps44 profile image
Babybaps44 in reply to Stephenlangtonriley

Thankyou for the advice I will take a look later thanks again

zeus49 profile image
zeus49 in reply to Stephenlangtonriley

I think CAB may help you with advice on pip. If you're struggling you deserve to claim working or not good luck babybaps44.

zeus49 profile image
zeus49

Hi babypaps44 if at first you don't succeed try try again and don't give up. You could always speak to a welfare rights person it's worth a try. I wish you well. Keep resting your feet too.

Babybaps44 profile image
Babybaps44 in reply to zeus49

Thanks where will I find welfare rights person thanks for your kind words

For PIP applications your best first choice is your local disability advice centre, if you have one. I used the Richmond Upon Thames AID centre in Teddington myself. They have a wealth of experience in both the forms and benefits, mainly staffed by disabled people, so they have already been through themselves.

Babybaps44 profile image
Babybaps44 in reply to Stephenlangtonriley

I will see if we have one thanks for the advice

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