5 flares this morning.: Hardly slept all night which is... - NRAS

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5 flares this morning.

mattcass profile image
8 Replies

Hardly slept all night which is not unusual on it's own, Woke up with 5 flare ups hope they are still with me this afternoon when I see my Rheummy everytime I see him he looks at me and says I'm looking but can't see anything well today he can sit there and listen.matt

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mattcass profile image
mattcass
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8 Replies
miss profile image
miss

Good luck Matt for this afternoon. I will be thinking of you. Truly hope you get something to help you xx

Caza profile image
Caza

Good luck Matt x

Sorry to hear you are suffering Matt, but at the same time I hope the consultant sees you at your worst so you can get some treatment to help you. xx

nomoreheels profile image
nomoreheels

Weirdly & it goes against the grain to wish someone ill but I hope it's as bad this afternoon Matt. Let us know how it goes won't you? I've been following your posts since coming back to us & though unable to help I wish you well & that the right decision is arrived at for your treatment between your Specialists & yourself. :)

Hobbits profile image
Hobbits

Isn't that the way?

You suffer and suffer, then you get better for your appointment!

That's the way with RD, daily changes.

Tell you doctor about all your flares, I try to keep a updated diary so I can tell my Rheumy esp. If it's months between appointments. Your doctor is aware that RD changes daily.

Good luck today!

Lee_Evenden profile image
Lee_Evenden

This sounds so familiar to me so I know how frustrated you feel.

I've seen the specialist nurse when I'm flaring and taken photos but my rheumy only seems interested in what she directly sees so I generally go away from her feeling so down.

Anyway, I hope you're appointment went better

mattcass profile image
mattcass in reply to Lee_Evenden

Thanks Lee, the consultation went well my next step is Biological Agents not safe but it's got to be better than what i have been through in the last couple of months.matt

Lee_Evenden profile image
Lee_Evenden

Hopefully you'll get some good results from the biologics Matt, fingers crossed for you.

At the moment my rheumy's plan is to get me back up to my previous dose of sulpursalazine then back onto mtx if my liver behaves itself! I don't think I was prepared for how long a road it is finding a treatment that works!

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