Posts - Kidney Disease | HealthUnlocked

Kidney Disease

11,176 members • 4,823 posts

All posts for January 2023

A quick update

I had to cancel my scan and also the cystoscopy because I got a text from the doctor saying I was growing an an infection I just cannot get rid of this damned...

I had to cancel my scan and also the cystoscopy because I got a text from the do...

fartikins

•1 year ago

22 Replies

Survey from the National Kidney Foundation

The National Kidney Foundation wants to learn about the unique experiences kidney patients faced when they were first diagnosed with kidney disease. Your input...

The National Kidney Foundation wants to learn about the unique experiences kidne...

Bassetmommer

NKF Ambassador•1 year ago

8 Replies

how to comfort the shortness of breath in stage 5

My grandma has chosen an at home death in a small town & making her feel comfortable at home has been challenging. The shortness of breath keeps her up the...

My grandma has chosen an at home death in a small town & making her feel comfort...

SmallTownCarer

•1 year ago

5 Replies

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Had visit with Nephrologist

I met the Nephrologist, he looked over my labs (I brought a bunch of previous labs for him as well), we talked about symptoms, we talked about some known...

I met the Nephrologist, he looked over my labs (I brought a bunch of previous la...

TheSQLGuy

•1 year ago

8 Replies

I am really on the edge now.

Its bad enough having to wait until Friday for this cystoscopy but this morning I received a letter from the radiology dept about my upcoming ct scan on...

Its bad enough having to wait until Friday for this cystoscopy but this morning ...

fartikins

•1 year ago

25 Replies

Dry Fasting

I want to perform dry fasting (Muslim Ramadan fasting). I will not consume any liquid and food during the fasting window of 14 hours in a day. I will...

I want to perform dry fasting (Muslim Ramadan fasting). I will not consume any l...

milo_miller

•1 year ago

4 Replies

Consistent proteinuria but normal other tests?

Hi all, I have had protein in my urine show up for just under a year. For a little while I also had pain in my kidneys although this seems to have gone. Urine...

Hi all, I have had protein in my urine show up for just under a year. For a litt...

FittoniaPlant

•1 year ago

4 Replies

Starting my journey

Last October a blood test revealed a GFR in the 3A stage. Next month is the followup and I'll know what stage it is now. Being 77, it may be chalked up to old...

Last October a blood test revealed a GFR in the 3A stage. Next month is the foll...

Pte82

•1 year ago

20 Replies

Weakening bones/joints on dialysis

Hi I am on dialysis for 4 yrs after my first transplant failed. My bones and joints are weakening day by day. I do take calcium+vit d3 and cinacalcet for high...

Hi I am on dialysis for 4 yrs after my first transplant failed. My bones and jo...

ashok5085

•1 year ago

9 Replies

Making it real

This is my first post here. I'm an ADPKD patient and have known it for the past 15 years. It's inherited, and my mother suffered from it when I was young....

This is my first post here. I'm an ADPKD patient and have known it for the past...

PeaB4YouGo

•1 year ago

7 Replies

kidney function dropping

Hello friends, Just worried about my kidney function dropping in every blood test from last 3 months. Any suggestion plz. I’m vegetarian. Thanks heaps

Hello friends, Just worried about my kidney function dropping in every blood te...

Savreen1

•1 year ago

16 Replies

Black folks - contact your transplant program! Get your start date adjusted.

Black folks currently on the transplant waiting lists in the US can get their start date adjusted to the date their labs met the white criteria. Know any black...

Black folks currently on the transplant waiting lists in the US can get their st...

barbara55109

•1 year ago

32 Replies

Blood Tests Explained

I came by this great video explaining basic routine blood tests and what all the markers mean. This is not kidney specific, however it is very informative...

I came by this great video explaining basic routine blood tests and what all the...

oceansplash

•1 year ago

3 Replies

Back with Questions

Still having a hard time finding the right food. Never full and eat way to many carbs. No meat. I believe that the weight lost will help my kidney...

Still having a hard time finding the right food. Never full and eat way to many...

Babygirl60

•1 year ago

17 Replies

egfr / creatinine rapid drop

i have had ckd stage 3a for 5 years. always been fairly stable. last sat went in for kidney labs after 5 months in which i had covid and took paxlovid and seem...

i have had ckd stage 3a for 5 years. always been fairly stable. last sat went in...

renegade70

•1 year ago

2 Replies

Small left kidney suggesting vascular insufficiency

My husband recently got an Abdominal CT , and it was noted that he has a "small left kidney suggesting vascular insufficiency". His urologist (we have one in...

My husband recently got an Abdominal CT , and it was noted that he has a "small ...

GoodHealthIsAJourney

•1 year ago

1 Reply

Confused by labs

My EGFR has been below 60, as low as 53 for 6 months. I was told a couple of months ago that I am Stage 3A. Finally got appt with nephrologist to see what to...

My EGFR has been below 60, as low as 53 for 6 months. I was told a couple of mo...

TheSQLGuy

•1 year ago

8 Replies

Type 2 Diabetes and ckd

I'd like to know what is the best diabetes medicine for type 2 diabetes that won't lower kidney function (I do not need insulin) ?and my egfr is 22

I'd like to know what is the best diabetes medicine for type 2 diabetes that won...

Starrstruck

•1 year ago

10 Replies

Restless Leg. Highly Annoying.

I m CKD End stage patient. Attending Haemodialysis since March,2022.I hv started developing Restless leg which does not let me sleep and has turned my life...

I m CKD End stage patient. Attending Haemodialysis since March,2022.I hv started...

CKD_SMK

•1 year ago

2 Replies

Yesterday Saw My Nephrologist

Hi Everyone, Yesterday I had an appointment with my nephrologist I was being seen every three months, but my labs in October of last were stable so they had...

Hi Everyone, Yesterday I had an appointment with my nephrologist I was being se...

bbeba103

•1 year ago

24 Replies

Help on labs

My eGFR fluctuates between high 30s to low 40s. I had labs last week and it was 39 with the "regular" blood draw. But my neph had also ordered a cystatin c...

My eGFR fluctuates between high 30s to low 40s. I had labs last week and it was...

jodaer

•1 year ago

14 Replies

Just saw this in the Guardian

https://www.theguardian.com/science/2023/jan/18/scientists-eating-oily-fish-lower-risk-of-chronic-kidney-disease-omega-3-fatty-acids No paywall so you can...

https://www.theguardian.com/science/2023/jan/18/scientists-eating-oily-fish-lowe...

Loobs39

•1 year ago

3 Replies

supplements

Developed ARF after taking sulfa drug, spend about 4 months on dialysis. I’m stage 4 kidney disease with GFR of 25. I was told I can qualify for transplant...

Developed ARF after taking sulfa drug, spend about 4 months on dialysis. I’m st...

stellabellarn

•1 year ago

5 Replies

A bit concerned about a cystoscopy

Hello - has anyone ever had a cystoscopy. I just cannot get rid of this constant uti no matter what I take. I went to see a urologist and he recommended a...

Hello - has anyone ever had a cystoscopy. I just cannot get rid of this constan...

fartikins

•1 year ago

36 Replies

Ring in the New Year with 5 Kidney Disease-Friendly Superfoods

We want to share five healthy food choices to help kickstart your new year. To learn more, visit:...

We want to share five healthy food choices to help kickstart your new year. To l...

JackieJ_NKF

Partner•1 year ago

7 Replies

Does biopsy help? Appreciate any feedback or personal experience.

Hi all, My condition in brief: 30 Y. Creatinine at 2.4 with and EGFR at 36. No symptoms. Proteinuria leak at 1g. Stage 1 hypertension. All other organ...

Hi all, My condition in brief: 30 Y. Creatinine at 2.4 with and EGFR at 36. No ...

kanna089

•1 year ago

28 Replies

vitamin b12 deficiency

Hello, I am writing to ask if any one following a plant based/vegan diet has been told their vitamin b12 is low. I get so confused as what the best way to...

Hello, I am writing to ask if any one following a plant based/vegan diet has be...

Yankees28

•1 year ago

10 Replies

New to CKD

New to this site, I was referred because I'm just really shy and I'm trying to live with ckd and it's hard cause it's lonely and hard to find people who...

New to this site, I was referred because I'm just really shy and I'm trying to l...

RHOC

•1 year ago

13 Replies

CKD on PD DIALYSIS

I'm insulin dependant and i am on pd DIALYSIS. My kidney had failed completely. I was on hemo dialysis from December to July last year. It was not good and...

I'm insulin dependant and i am on pd DIALYSIS. My kidney had failed completely. ...

RHOC

•1 year ago

19 Replies

Motrin

So I had oral surgery, and the dentist gave me prescription for Motrin 800 mg. I know usually NSAIDs are not good for us. My kidney dr never told me I could...

So I had oral surgery, and the dentist gave me prescription for Motrin 800 mg. ...

Sarah_402

•1 year ago

25 Replies

Posts - Kidney Disease | HealthUnlocked

Kidney Disease

All posts for January 2023

A quick update

Survey from the National Kidney Foundation

how to comfort the shortness of breath in stage 5

Had visit with Nephrologist

I am really on the edge now.

Dry Fasting

Consistent proteinuria but normal other tests?

Starting my journey

Weakening bones/joints on dialysis

Making it real

kidney function dropping

Black folks - contact your transplant program! Get your start date adjusted.

Blood Tests Explained

Back with Questions

egfr / creatinine rapid drop

Small left kidney suggesting vascular insufficiency

Confused by labs

Type 2 Diabetes and ckd

Restless Leg. Highly Annoying.

Yesterday Saw My Nephrologist

Help on labs

Just saw this in the Guardian

supplements

A bit concerned about a cystoscopy

Ring in the New Year with 5 Kidney Disease-Friendly Superfoods

Does biopsy help? Appreciate any feedback or personal experience.

vitamin b12 deficiency

New to CKD

CKD on PD DIALYSIS

Motrin

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