New to CKD: New to this site, I was referred... - Kidney Disease

Kidney Disease

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New to CKD

RHOC profile image
RHOC
13 Replies

New to this site, I was referred because I'm just really shy and I'm trying to live with ckd and it's hard cause it's lonely and hard to find people who understands what I'm going through...I hope that helps. I look forward to seeing what this sure has to offer for help 😊

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RHOC profile image
RHOC
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13 Replies
S_dillow profile image
S_dillow

welcome.this forum is a good place for information,ckd news,etc and its good to have you.whatever questions you have,ask away.

NurseRed profile image
NurseRed

Great to meet you .i started out as PD am now on hemo due to bad case peritonitis .if i can help any or need to talk let me know.what part of us are you in .im in Va.

RHOC profile image
RHOC in reply toNurseRed

I'm in ut

RonZone profile image
RonZone in reply toNurseRed

Hey, since I'm just starting PD again, what is the most important thing to watch out for to prevent peritonitis?

RHOC profile image
RHOC in reply toRonZone

Keeping your hands washed before you do anything and all the time. Even if you don't think you need to be washing your hands, do it

jodaer profile image
jodaer

Welcome to our group. I'm not yet on dialysis so don't know what you're going through but am here to listen

Blackknight1989 profile image
Blackknight1989

Welcome and make yourself at home….US or UK? If you’d like I can give you 3/4 websites that are really good for the “lonlies”. For example, NKF.org in the US has virtual support groups. If interested I’ll give you a couple three places to help, just let me know. Meanwhile, enjoy, don’t be shy and there are many, many people here who care and want to help!

Bet117 profile image
Bet117NKF Ambassador

Hi RHOC, Welcome, welcome!

You are among friends in our community; folks from different backgrounds, with different health issues and experiences who are compassionate , supportive and knowledgeable.

Feel free to reach out at any time as someone will always reach back.

Happy to have you.

Bet 😊

metalminded profile image
metalminded

welcome! I’ve been on both hemo and PD and had my transplant 10 years ago. I’ve had many challenges, including needing another transplant because of damage due to BK virus.

WYOAnne profile image
WYOAnneNKF Ambassador

Hi, and welcome to this wonderful site! My advice to you is to learn anything you can about CKD. You can start with the NKF website kidney.org

Davita.com also has a FREE kidney school on line.

I am 23+ year post-transplant and have learned that not all doctors know a lot about CKD nor do they always give good advice. By knowing everything you can - can really help you. Knowledge is power.

Take care - stay away from NSAIDS, drink plenty of water and start a kidney friendly diet. NKF can give you ideas of foods and diet.

We are here for you...

AENEASavc profile image
AENEASavc

I joined this site about two months ago. I find it to be very helpful. Everyone is kind in answering questions and giving support. You certainly have a lot of concerns to deal with. It is not easy but please hang in there.Something that I have found that picks up my spirits is to do something nice for myself and someone else each day. It doesn’t have to be something big. Often the little things are what mean a lot.

ArtgirlZ profile image
ArtgirlZ

Hi and welcome. I’ve only been on a couple of weeks and already have learned stuff. I agree that finding out all you ca about CKD is very important and helpful for sanity. I’ve gotten more serious about it since I got on here. Wish I’d done it from the beginning. There’s a lot of information out there.

Epril profile image
Epril

Welcome! I too am shy and have social anxiety which makes everything so much harder! There is a lot of good info and support here!

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