I was first diagnosed with CKD in August 2006. I noticed blood in my urine and went to an urgent care and they sent me immediately to the ER. My BP at the ER was 260/140. The doctor in the ER tried to lower my BP too fast and I passed out and almost went into a seizure. I was in the hospital for a week (3 days in the ICU) while the doctors safely lowered it. My creatinine in the hospital was 2.9 Stage 4 (46 year old male at that time). It improved to 2.1 shortly after I got out of the hospital and started taking oral meds. I had an MRI done at that time to check for blood flow blockages to the kidneys and everything was normal. The doctors were not really sure what could have caused my BP to go so high at age 46.
BP has been fairly well controlled with meds since that time. My enlarged heart eventually became normal thickness and continues to be a stable size (I recently saw my cardiologist for an echo). My creatinine also improved over time and in Feb 2013 it was as low as 1.39 (almost stage 2).
Not sure why but my creatinine has been increasing since that time, possibly because I became a mild Type 2 Diabetic due to weight gain (A1C of 6.8). My creatinine went to 2.3 in Mar 2016 (bottom of stage 3), and now (June 2018) it is now 4.4 (GFR 14). I'm also somewhat anemic - hemoglobin is currently 11.0.
My old nephrologist retired and my new doctor wants me to start dialysis, but I told him I'm not really symptomatic yet, just a little itching and a little tired if I don't get 8 hours sleep. I told him I want to stay off dialysis as long as possible, but he doesn't seem to listen or care. He doesn't want to do a kidney biopsy or even order a new A1C (my last A1C was two years ago). I could have uncontrolled diabetes (currently not taking any meds for diabetes). My most recent Fasting Blood Glucose was 102, which the doctor said was "not bad", but I told him I still could have a diabetic A1C. He also doesn't want to help me with my anemia, he said "hemoglobin of 11 is not that bad". I'm thinking I could be perhaps be iron deficient since becoming more of a vegetarian. At least my lipid profile is good: LDL is 88 and HDL is 60.
I see the nephrologist next week to go over my most recent labs and am going to tell him I want to start the very low protein diet to defer dialysis as long as possible, since I've seen that a lot of people have raised their GFR and/or stabilized it via the diet. I also want him to order an A1C and possibly a kidney biopsy so at least we know what's going on. Perhaps I'm already doing those things to lower my A1C as I've lost 12 pounds in the last three months through diet and exercise. I would at least like to get my GFR back into Stage 4 range and maintain it there, but perhaps it's too late.
Of course, anyone how googles "kidney failure" comes across a lot of things which seem "too good to be true" cures, like stem cell treatments in Thailand or a kidney clinic in China which promises to get people off dialysis. Real solutions for CKD like the artificial kidney project at UCSF or stem cell treatments from the Harvard Stem Cell Institute seem at least 5-10 years away. Dialysis isn't the end of the world, but life will suck while on it.
I hope this isn't too much at once, but does anyone have any suggestions or helpful comments? Perhaps it is time to get a second opinion from another doctor. Thanks.