P-ANCA & ANTI GBM (GOODPASTURE S)

[macarena1]

P-ANCA AND ANTI-GBM (GOODPASTURES)

I got sick end of March 2017, 2 days after my first XOLAIR shot. Docs thought i had pneumonia for 4 months, 100% right lung-75% left lung, no hospital ir bloodwork, just meds and nebulizer. Another Doc finally did bloodwork, I ended up in ICU for 15 days: eGFR 10, Creatinine 4.75. Lungs and kidneys = 2 ULTRA RARE Vasculitis Diseases = ANCA & GOODPASTURES. (March 2016 started Synthroid for thyroid.) In hospital, Nephrologist & Pulmonologist started Very Aggressive treatment: massive doses of steroids - 500mg Prednisone, 14 days plasmapheresis, and CYTOXIN chemo. Miracles happen as my eGFR is close to 40 and Creatinine about 1.39. Goodpasture in remission but Anca is not. Started Anti-Rejection Chemo/CELLCEPT. Immune system is low, trying to stay healthy and gave had such hard time breathing for months. Stopped taking B12, Centrum Multivitamin and Caltrate before a recent heart stress test. I've been breathing better but not all better. One day at a time...

WAS STAGE 5 KIDNEY FAILURE, eGFR 10/CREATININE 4.75 !

P-ANCA

ANTI GBM

(Goodpastures)

[KelliC_NKF]

For more on goodpasture's visit: kidney.org/atoz/content/goo...

[macarena1 in reply to KelliC_NKF]

Thank you for that link. Doctors thought, and treated me, I had recurring pneumonia. After landing in the hospital, biopsies showed old blood. I never had pneumonia, but the ANCA & GOODPASTURES were attacking my lungs and kidneys. I am so very lucky that my lungs did not hemorage as I would have drowned in the blood. Docs think that the blood is what was in my lungs for that 4 months, 100% Right Lung/75% Left Lung, yet no one did bloodwork and no one put me in the hospital. I'm thankful for those wonderful doctors that took the time to figure it out, treated me, continue to treat me, and give me hope of getting better. I'm thankful every day to be here, and live one day at a time.