Just an update, and frustration vent (pardon me for venting, but not many places I can do that!)
I've been, over the last month, slowly getting worse. Neuro said to wait till my appointment in May, and we kinda had to for a bit, because we are doing, as I said in a comment, what I'm calling the insurance tango. My husband was the first of many layoffs at his job. I really think that it was because he worked from home so much during my diagnosis stage (not worries, he was able to find a new job quickly, but insurance is... tricky, as you all know).
Well, this last, oh, a little over a week, as I wrote in my last post, my dizziness has gotten so much worse. Not as bad as my flare that led to my diagnosis last Fall/Winter, but it's also different and is making me super nauseated and unable to eat at times. We thought it might be my iron levels, but hematology says that it's my MS. Neuro says it could be my iron, and wants to wait until I get my iron infusion, either this Friday or next, to see if it helps.
So over the weekend, my calves started hurting, then Monday (or Sunday, time is difficult to keep track of 😅), my left leg started jerking/twitching slightly, my left calf started having tremors, my left side of my body in general is in pain, and my left sided headaches started getting worse. So I messaged neuro. They put me on a tiny amount of Baclofen, ordered a lab to see if I have an infection, and want to wait till after the iron infusion to do anything. Talked about possibly ordering an MRI, but not yet (well can't until the 1st because of insurance!). I get waiting till the lab comes back, but not till after the infusion. My low iron is not causing all the other stuff that is going on.
I am just frustrated at the insurance issues, having to wait till I'm getting this bad for neuro to do anything, and there is so much going on this week! I'm in the process of making a chocolate blackberry cake and even with my Teens help it is taking days to make with everything going on.
Pic is of an orange (for MS) brontosaurus (because I love them!) that I bought to go on adventures with me! I'm turning my crafting IG into a more MS awareness thing, so this little guy is going to go adventuring with me! For example, when I go to get my labs, I'll take a pic of it in the lab chair to post! 🤣🤣🤣I think it will be hilarious and fun! I had not realized that it was MS Awareness Week till I read a post on IG last night and thought of the idea for taking along an adventure buddy. I don't like posting pics of myself, that gets me weird messages... 🫢😥so taking pics of... well, I'll have to get my Teens to help me name it! But of the dino instead of me in places I go, will help me get back to posting, and give me a small way of helping with MS awareness!
I am @KarrisCorner on IG (profile pic is of a purple crocheted monster hat I made for one of my kids years ago!) if you want to follow along on our adventures! Let me know you are from here on a message and I'll follow you back!