My Ocrevus Infusion...?

[Jesmcd2]

My infusion is next Friday the 22nd. I don't want to go. It's at a Big hospital in NY State. (No not the city) Anyway, I tried back in March to get my infusion moved to my little home town hospital. Was told No. They aren't equipped. Stupid hospital anyway...

So my anxiety level is at an all time high! The infusion nurse's have been wonderful putting me at ease tho. I know my transport guys. Yes! I have been keeping tabs on them!!! 😐

Now, I have medical transport telling me, that without THEIR approval on some form, which they haven't gotten yet, I can't use them to go to my neurologist!?!?! I'm sorry what?

When exactly did Med transport get to decide which Dr I see?

So they have till Tues to get it, and approve it. Or I was told I would have to find a ride or change my appointment. Ughhh lady I'm gonna come through that phone!! That is just not possible, the friggin state is locked down! She's like, well call back on Tues and see. Grr!

And Jasper is limping, it's like seriously I need a break already! And no, I don't know why. Started yesterday, vet tomorrow.

🤗💕🌠

[Kenu]

That’s a real bummer just sit and wait till Tuesday 🤬. Then if they say no doesn’t leave you much time to look 👀 for another way. Dang I hate the way they system works or should I say doesn’t work 🤬. Prayers are with you that things work out 👍🙏😉 Ken 🐾🐾

[Jesmcd2 CommunityAmbassador in reply to Kenu]

Thank you Kenu I hate the sit and wait game, I'm not very good at.🙁🤗💕🌠

[jimeka]

Can you not have it done at your house? With this virus, it would be better for you. Hope it all turns out well, blessings Jimeka 🤗 🙏

[Jesmcd2 CommunityAmbassador in reply to jimeka]

Nope, have to get it done up at the hospital, ya know the one 2hrs away. Ughhh and I have been so careful about everything!!😭 Even with my cab drivers.😓🤗💕🌠

[Morllyn]

Wow! Sorry you are having those problems. I hope things get straightened out soon.🤗

[Jesmcd2 CommunityAmbassador in reply to Morllyn]

TY I'm telling ya, some good luck would be awesome about now! 🤗💕🌠

[rjoneslaw]

that's crazy. can u have it done at ur house

[Jesmcd2 CommunityAmbassador in reply to rjoneslaw]

Nope, unfortunately, have to have it done up there. Believe me I tried!😂🤣🤗💕🌠

[twooldcrows]

hope they get this figured out for you ...wow ...thought they were coming to the house ...good luck ...prayers to help get it done ...

[Jesmcd2 CommunityAmbassador in reply to twooldcrows]

Not for Ocrevus, you have to go to them, as far as I know. And it 2hrs for me.🤗💕🌠

[erash]

Hope Jasper is ok..maybe just a sprain?

It’s impossible for me to change infusion dates (or even get thru to the people at the infusion center) so I hope it works out for you.

You know, it’s time you had some 🌈

🤗

[Jesmcd2 CommunityAmbassador in reply to erash]

I'm just breathing through this, cause I don't know what's going to happen if I have to change the date.🙁 I'm gonna have one ticked off neuro I'm sure.😂🤣😂🤗💕🌠

[Jesmcd2 CommunityAmbassador in reply to Jesmcd2]

The vet can't see Jasper til Monday 😒 He's eating drinking and using the box and chilling. Guess that's all I can do for now.☺️

[pamgarner]

i tried to get my infusion locally(my dr is 70 miles away with infusion center)my dr told me i can't because he is not on staff there and if I have a side effect,he cannot prescribe me any medication to counteract it. also the rules have changed at infusion center,i have to be dropped off, my hubby cannot come back with me or sit in the waiting room,not that I would want to,germy place!but to up drop me off and pick me that would be 140 mile drop off and 140 mile pickup,everything is so complex right now,hope you get yours worked out

[Jesmcd2 CommunityAmbassador in reply to pamgarner]

That's how ours is set up. Take your temp before you go in, have mask's. I got sanitizer wipes finally yesterday! So will be taking some with me!🤣🤗💕🌠

[IFwczs]

I have cancelled my Ocrevus infusion in July and will wait until COVID-19 is over. (I was due for my annual MRI as well, but my neurologist told me not to do it.)

[Jesmcd2 CommunityAmbassador in reply to IFwczs]

Why did you cancel it IFwczs ? I'm just curious.🤗💕🌠

[IFwczs in reply to Jesmcd2]

I am worried about getting infected with COVID-19 in the hospital. Like most people where I live.

[Jesmcd2 CommunityAmbassador in reply to IFwczs]

Understand! 🤗💕🌠

[Goldilockssearching]

I was supposed to go May 6 but Neuro ordered B cell test in Apr which came back 0. She canceled it and I need to get B cell checked again 5/21. If still 0, she will likely delay again. If any present then I’m to get the infusion. Is this maybe an option for you?

[Jesmcd2 CommunityAmbassador in reply to Goldilockssearching]

It's been set up for 6mos. I'm sure they will get me in at some point. 🤗💕🌠

[Goldilockssearching in reply to Jesmcd2]

Mine was too. Neuro thought it safer to resch for a later date.

[mrsmike9]

I went to get a normal blood draw at the lab where my dr's office is and they are screening everyone at the door. Once you get in the door it shouldn't be an issue. Getting there, though, sounds like it really is!

I take my boys to a therapy every Wednesday and sit in the car and read for 2 hours. Early on I would do grocery shopping but now I just sit in the car and read. Their last one is July 1...

[Jesmcd2 CommunityAmbassador in reply to mrsmike9]

Getting there is bs! I'm glad you have that time to read. Your going to have to find that time when it ends.🤗💕🌠

[mrsmike9 in reply to Jesmcd2]

I read every day before bed. I keep track of the books I read in a year and every year it's more than the one before. How many people can say they read close to 100 books a year! The more stressed, unhappy, whatever I am the more I read. Escapism.

[kdali]

Hoops and more hoops! How frustrating 🤬

[Jesmcd2 CommunityAmbassador in reply to kdali]

Always hoops! 😂🤗💕🌠

[carolek572 CommunityAmbassador]

Just when you think that you're all set, the goal posts get moved! I hope that everything is all straightened out by the time that you need to go in for your infusion. However, Goldilockssearching is bringing up an interesting observation that perhaps a 6 month schedule of Ocrevus infusions might not be required for everyone. Hmmm...