Second Full Ocrevus Infusion: Today I had... - My MSAA Community

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Second Full Ocrevus Infusion

Raingrrl
Raingrrl

Today I had my second full Ocrevus Infusion. I was at the infusion center for a little over 6 hours again. The Benadryl that was part of the premeds knocked me out just like it did the other times. But that’s a good thing! I need the sleep and it eats up an hour of the time. The only other reaction I had is another bad headache. This one came on about an hour ago which is about 6 hours after I left the infusion center. So far Excedrin, my headache drug of choice, has not made a dent in it. The infusion also made me tired as usual but that happened with Tysabri too.

I’m scheduled for MRI’s on Wednesday.

16 Replies
oldestnewest

Don’t let the headache stay too long. Ring your doctor or whoever if it continues. Let us know please how it goes and your mri results. Blessings Jimeka 🤗

Raingrrl
Raingrrl in reply to jimeka

hi jimeka! The headache was gone by the time I woke up this morning. I still feel extra fatigue but I've been feeling that for a few days. The infusion just made it a little worse but that is normal for me. My tysabri infusions always added to the fatigue I feel. It gets better after a few days but fatigue is my constant companion.

jimeka
jimeka in reply to Raingrrl

Pleased that the headache has gone, hope all goes well tomorrow 🦋

Sounds relatively uneventful—a good thing of course! Hope the MRI and effects of the ocrevus are 👍👍👍

Jesmcd2
Jesmcd2CommunityAmbassador

I hope your headache has gone away Raingrrl !!! And your MRI is a good one! 🤗💕

J🌠⛄

greaterexp
greaterexpCommunityAmbassador

I'm sorry about the headache. Does your doctor know about it? I'm so glad it was otherwise uneventful. We wish you well with the MRI!

Raingrrl
Raingrrl in reply to greaterexp

thanks @greatexp. I haven't talked to my neuro about the headache. I probably should but unfortunately for me, it looks like I have to switch to my neuro's office partner whom I have no relationship with. My neuro told me at my appointment two weeks ago that he has been diagnosed with cancer and may not be coming back to his practice. I've been going to this neuro for many years and I trust him. Starting over with someone else is not something I'm happy about.

greaterexp
greaterexpCommunityAmbassador in reply to Raingrrl

I'm sorry for your poor neuro and what he's going through. I'm sorry about having to switch. I always dread changing doctors and feel as though I'm starting from scratch with getting them up to speed about my history and then building relationship. I sure hope you find a great new neuro.

Raingrrl
Raingrrl in reply to greaterexp

I've been going to my current neuro for so long, I dread bringing a new doc up to speed and building a relationship. I will give his office partner a try because this is an MS clinic that is relatively close and she is also an MS specialist. Even in the greater Seattle area with all of the premiere medical care available and the high incidence of MS, MS specialists are few and scattered.

bxrmom
bxrmom in reply to Raingrrl

Hopefully, since she is in the same office she will read your chart to better understand what you have going on and will only have to update her on anything new you have going on/concerns. Best of luck, keep us updated.

Jessie

carolek572
carolek572CommunityAmbassador

Raingrrl Happy that infusion is now behind you, however, don't suffer with that headache. Call your doctor to let them know. They might have something to offer to eliminate that headache ~ sooner rather than later.

Keep Smiling and Stay Strong,

Carole :-D

Raingrrl
Raingrrl in reply to carolek572

thanks carolek572. The headache was gone when I woke up this morning. I probably should let my neuro know that I've had a headache after each infusion. Unfortunately I have to switch neuros because my long-time doctor has been diagnosed with cancer and may not come back to his practice. I'm being switched to his office partner whom I know nothing about and have never met. Sigh.

carolek572
carolek572CommunityAmbassador in reply to Raingrrl

Raingrrl

So happy that your headache is gone. That's unfortunate that you have to change your neuro. The neuro that you are going to go to is in the same office as your beloved neuro? Perhaps this neuro is just as good, and the benefit is that he/she doesn't need for you to provide your records at your first visit. Hopefully it will be as good if not better care for you.

Keep Smiling,

Carole :-D

Raingrrl
Raingrrl in reply to carolek572

Yes...the neuro I'm going to try is my neuro's office partner. They run the closest MS clinic and are specialists. And the benefit of trying her is that she will have access to my records going back over 10 years. I just hope I like her. I have a difficult time trusting new doctors because of an incident when I was in my twenties.

carolek572
carolek572CommunityAmbassador in reply to Raingrrl

I understand. I am keeping my fingers crossed for you for the best.

Good luck with the MRI results, I hope you get good news. Best wishes with the new neuro, I hope you learn to trust her and any fears you have will dissipate quickly. It is difficult to lose a great doctor. My best hopes for him returning to his practice.

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