So today was Ocrevus half dose 2 . Feel fine , was feeling tired by the end but that was boredom kicking in. Am home now and feel more awake .
Mistake I made this time was not having the same amount of healthy snacks with me , had ate most of them by lunch. Was extremely jealous of the lady who had brought in cookies , cakes and crisp ( chips for those in USA ) I was trying to be so good but by 14:00 I caved as she was sharing the cookies .
It’s was quite nice actually there was 4 us 1x lady on first half dose , 1 x lady on 2nd half dose and another lady going on to lemtrada ( she brought the supply’s ) . I could she the lady on her first half dose was scared but I think talking to us helped and it was Interesting to hear what stages we were all at and what has happened to us .
Turned in to a free support group to kill the time . Lol
Take care all xAx
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Annabal82
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Annabal82 So happy that you are back at home after your 2nd Ocrevus 1/2 dose. You also met a few new friends who helped each other. That makes the time go by so much better, and especially when you were offered a cookie! Oh, happy days!
Starting to talk to the others definitely sped up the last 1 hour and a half. We were all getting the fidgets . I will be more prepared with snacks in June , I just completely forgot this time . xAx
Whoops sorry I meant July . 30th of June I will be subbing myself in Greece . Think that’s why the date sticks in my head as my friend flys out. Lol lol
Thank you for asking Jimeka . He’s fine now . Sleep for the next few days after which he does , to be honest rest is the only thing after that he needs .
Something I probably need to do more , we both worry far to much about each other. It was nice there was a few of us today, and I think one of the ladies boyfriend who came and sat with use found it useful as I think MS aid new to him , as he hasn’t realised everyone is different .
So I drive but I am on a 3 year licence which get reviewed , The other lady had her driving licence taken as her eye sight was so bad and another lady had a mobility car.
As we said every person is different and for some it’s slow other progression is faster . It’s how you choose to live your life and adapt to what new thing it throws at you. I have always chosen humour so when I had an optic I wore an eye patch to work for a bit . Told every one I was training to be a pirate . Lol lol xAx
So pleased that your boyfriend is recovering well, and that Ocrevus is an option for you. I hope that you get good results from it. Take care and keep in touch, Blessings Jimeka 🦋
So glad that you 2nd half-dose went well! I had my first half-dose yesterday and am so grateful that I didn’t have any awful side effects. Thanks to your post, I made sure that I brought water and snacks to deal with being at the infusion center for such a long period of time. Hope your first full dose goes just as well as the two half-doses!
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2nd half of Ocrevus done
As i posted today was my second half dose. My nurse brought out a “comfort cart”
Vaccine dose #2 done: next Ocrevus infusion in 4 weeks
