Second dose of Ocrevus is done. - My MSAA Community

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Second dose of Ocrevus is done.

ssdw1958 profile image
7 Replies

Hi all I did answer some of you but I would like you all to know how I did.

When I started my second dose I remembered on my first dose I had to take two Tylenol and they were too big so I asked if they could be cut in half, and the nurse did cut the pills. After I let the nurse know I brought my pill cutter and she was Pleasantly

Surprised. Ok about the Ocrevus I had know problems in taking the medicine and I feel pretty good. My left foot that has foot drop I have been able to pick up my foot a lot YEAH.

One thing that did happen was that the bags that hold the steroids they don’t have any and so they had to put it in with a syringe. The reason being is those bags are produced in Puerto Rico and since they don’t have power she said they will have them till the end of the month the Ocrevus is in its own bag who would have thought that would effect us in Boston MA

But again my treatment went well I will let you know how I am doing

Have a good night

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ssdw1958
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Jesmcd2 profile image
Jesmcd2CommunityAmbassador

ssdw1958 Good Morning 🌞 Glad things went well for you at your appt! 😊 Don't they make chewable Tylenol? Could you take that maybe? Just curious.

I'm thrilled that it helped with your foot drop! 💕 Kind of gives me hope.😊

As far as the IV bags go from Puerto Rico? You know what they say about a butterfly wings in the mountains, it can change the weather in an instant.😊

J 🌠👻

Diva1976 profile image
Diva1976

Thanks for sharing ssdw1958. This gives me hope for when I start this medication. I know we’re all different but it’s nice to know that you’re noticing improvement.

ssdw1958 profile image
ssdw1958 in reply to Diva1976

It is a good thing I was getting a little bit down with everything not working not that I can run in a marathon but getting up and trying to do something in the house is a start.

Have a good day!

greaterexp profile image
greaterexp

ssdw1958 , that’s wonderful and encouraging news! Thank you for letting us know, but do keep us posted.

jimeka profile image
jimeka

ssdw1958 by the sounds of it, by the time it gets approved in the uk, you will all be walking and flying. Thank God it went well. I pray that the improvements keep coming, blessings Jimeka 🦋 🤗 🌈

bavery207 profile image
bavery207

ssdw1958 thanks for the update, it gives us all hope!

ssdw1958 profile image
ssdw1958

Jimeka the walking part would be great now about that flying part I will have to think about that LOL

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