Experiences with

Lemtrada

Is anyone taking Lemtrada? What has been your experience with it and what type of MS do you have?

Having had lemtrada treatment I developed Graves’ disease and have taken 20 mg of carbimazole for 2 years but things are still not settling down

Took Lemtrada a few years ago....The best thing I did for myself. I feel great can do many things I hadn't done in years no relapses no new lesions. I can once again get on a motorcycle, walk up stairs without holding on to railing AND I can zip my pants again That is a big deal.

Took Lemtrada a few years ago. Thanks!

Do my past infusions with Lemtrada (2015) have any impact on my response to COVID-19?

CDC and NMSS stated that virus is at a higher risk for people on MS infusions (Tysabri, OcRevus, Lemtrada, etc.). Here are CDC guidelines to be safe: Wash your hands” often while out in public or use anti-bacterial hand gels/wipes. When you come home, wash your hands with soap first thing.

Hey MS community! No energy, recurrent zoster virus lesion right face(so painful). In my ear, my nose, lip, eye scalp. I will have all at once then heal up then return with sections .

If you take Lemtrada, be sure to get your flu shot six weeks prior to your infusion. This will optimize your body's ability to form antibodies against the flu virus.

Anyone on Lemtrada? Being suggested to mje after 18 mons on Ocrevus with no results.

It’s was quite nice actually there was 4 us 1x lady on first half dose , 1 x lady on 2nd half dose and another lady going on to lemtrada ( she brought the supply’s ) .

I am on Lemtrada for my MS and am looking for a new Endocrinologist to follow me for my PCOS and Thyroid levels especially. The Lemtrada can have massive effects on the thyroid glad and am in need of treatment. Any suggestions are appreciated. Thank you in advance.

I am on Lemtrada for my MS and am looking for a new Endocrinologist to follow me for my PCOS and Thyroid levels especially. The Lemtrada can have massive effects on the thyroid glad and am in need of treatment. Any suggestions are appreciated. Thank you in advance.

A couple years ago, my second opinion MS doctor mentioned Lemtrada to me. (That was before Ocrevus.) I just saw that, like Ocrevus, Lemtrada kills B-cells and T-cells. What is the difference between the two (other than the price - Lemtrada is $300K a year)?

https://multiplesclerosisnewstoday.com/2018/12/05/lemtrada-linked-to-lung-hemorrhage-in-ms-patient-1-of-5-known-worldwide-cases-study-says/?utm_source=Multiple+Sclerosis&utm_campaign=bebdaa1170-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-bebdaa1170-73067309

My path has taken a detour this past week and now I decided to start a different IV infusion treatment-Lemtrada. This Tx is supposed to help reduce frequent relapses for people w/ aggressive RRMS.

https://multiplesclerosisnewstoday.com/2018/08/21/high-ms-activity-seen-patient-after-consecutive-use-immunotherapies-case-report/ I swear they are trying to make us worse!

Oh lastly for MS over the 18 years I've done just about every injectable DMT and found out few months ago I was 20 years out of being wheel chair bound and disease was becoming more aggressive so I am about 2 months post my first Lemtrada infusion treatment, again fingers crossed!

Which one is better. Its clear I cant swallow big pills, so tecfidera is out. Here we go again

Anyone on Lemtrada for more than a year? Im new here - :) Thanks!

Has anyone done Ocrevus after having Lemtrada, I have been told that I cannot have any new med till after 5 years of Lemtrada, I do not have any active lesions. Lemtrada made my walking a lot worse then it was. Was thinking that maybe Ocrevus would help. I see my Nuro. on 4/17.