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Tysabri
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Tysabri to Ocrevus?
I've had MS for nearly 30 years and I have been receiving
Tysabri
infusions since May 2012, but my MS has progressed and I've spoken to my doctor about switching to Ocrevus. I'm just wondering if anyone else has changed treatment and how did it go? Has anyone had positive results?
I've had MS for nearly 30 years and I have been receiving
Tysabri
infusions since May 2012, but my MS has progressed and I've spoken to my doctor about switching to Ocrevus. I'm just wondering if anyone else has changed treatment and how did it go? Has anyone had positive results?
CatMom3
in
My MSAA Community
1 month ago
Tysabri Infusions
I was previously had the Ocrevus Infusions and now changing over to
Tysabri
. At least this time for treatment, will be a little different to where I'll only to have to go twice a month, instead of every 2 weeks; like before. Has anyone had the
Tysabri
Infusions?
I was previously had the Ocrevus Infusions and now changing over to
Tysabri
. At least this time for treatment, will be a little different to where I'll only to have to go twice a month, instead of every 2 weeks; like before. Has anyone had the
Tysabri
Infusions?
Marz91
in
My MSAA Community
5 months ago
Kesimpta and PML
I'm currently taking Kesimpta and was previously on
Tysabri
. The pamphlet for Kesimpta states PML could develop. My Doctor took me off
Tysabri
because my JCV number was almost 2. When I asked about it he stated no one on Kesimpta had developed PML. I wonder how they know it's a risk?
I'm currently taking Kesimpta and was previously on
Tysabri
. The pamphlet for Kesimpta states PML could develop. My Doctor took me off
Tysabri
because my JCV number was almost 2. When I asked about it he stated no one on Kesimpta had developed PML. I wonder how they know it's a risk?
Bamagal14
in
My MSAA Community
7 months ago
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JC or John Cunningham Virus
When I was diagnosed with MS, I was placed on
Tysabri
. From what I understand, everyone is either positive or negative for the JC virus even if you don’t have MS. The reason they want to know is that
Tysabri
can elevate your JC level to such an extent that it can actually cause death.
When I was diagnosed with MS, I was placed on
Tysabri
. From what I understand, everyone is either positive or negative for the JC virus even if you don’t have MS. The reason they want to know is that
Tysabri
can elevate your JC level to such an extent that it can actually cause death.
Mark1499
in
My MSAA Community
7 months ago
DMT's
I used to be on
tysabri
and felt great but tested positive for JCV. Don't give up.
I used to be on
tysabri
and felt great but tested positive for JCV. Don't give up.
Birdloverforever
in
My MSAA Community
5 months ago
MS infusion treatment
Or the monthly
Tysabri
? Which one did you find most effective? The Safety Consideration sheet sounds scary. I would love to hear the cons/pros to your reactions. Thank you all !!
Or the monthly
Tysabri
? Which one did you find most effective? The Safety Consideration sheet sounds scary. I would love to hear the cons/pros to your reactions. Thank you all !!
Haku949
in
My MSAA Community
7 months ago
My Tysabri experience
I was on
Tysabri
for a little over 10 years. I had to come off of it due to my JCV being so high. It stayed positive but below 1 for almost 2 years. When it jumped to 1.71 my Neurologist took me off and 2 months later I started Kesimpta.
I was on
Tysabri
for a little over 10 years. I had to come off of it due to my JCV being so high. It stayed positive but below 1 for almost 2 years. When it jumped to 1.71 my Neurologist took me off and 2 months later I started Kesimpta.
Bamagal14
in
My MSAA Community
8 months ago
This is a day of winning 💪
Promise I'm not proud of that 😅).For the MS, I was on copaxone, tried on
tysabri
(couldn't continue, high JCV titre), so back on copaxone until the 1st of my status epilepticus events, then ocrevus, and I'm now on kesimpta. I don't think the kesimpta is working well for me.
Promise I'm not proud of that 😅).For the MS, I was on copaxone, tried on
tysabri
(couldn't continue, high JCV titre), so back on copaxone until the 1st of my status epilepticus events, then ocrevus, and I'm now on kesimpta. I don't think the kesimpta is working well for me.
Cwright170994
in
My MSAA Community
8 months ago
FDA Approves Tyruko, Biosimilar to Tysabri, for Relapsing Forms of MS
Received this in an email today: https://www.nationalmssociety.org/About-the-Society/News/FDA-Approves-Tyruko%c2%ae,-Biosimilar-to-
Tysabri
%c2%ae,-for?utm_source=imt&utm_medium=email&utm_campaign=fy23_societynewsletter_sep1_fy23&CampaignID=
Received this in an email today: https://www.nationalmssociety.org/About-the-Society/News/FDA-Approves-Tyruko%c2%ae,-Biosimilar-to-
Tysabri
%c2%ae,-for?utm_source=imt&utm_medium=email&utm_campaign=fy23_societynewsletter_sep1_fy23&CampaignID=
bxrmom
in
My MSAA Community
1 year ago
Tysabri
I personally am a believer in
Tysabri
and unless my JC level gets too high, I will continue to take it, I hope this helps anyone deciding on which DMT to take
I personally am a believer in
Tysabri
and unless my JC level gets too high, I will continue to take it, I hope this helps anyone deciding on which DMT to take
Mark1499
in
My MSAA Community
1 year ago
I thought it was just a cold!
Not on ocrevus anymore, but I had the 1st of my monthly
tysabri
on the 20th, and I've since got a chest infection 😞 a couple of nights of not being able to sleep properly had really affected me, to the point where on Monday just gone I was wanting to get in to see a GP!
Not on ocrevus anymore, but I had the 1st of my monthly
tysabri
on the 20th, and I've since got a chest infection 😞 a couple of nights of not being able to sleep properly had really affected me, to the point where on Monday just gone I was wanting to get in to see a GP!
Cwright170994
in
My MSAA Community
10 months ago
Tysabri for me
I don’t know about advice, but I can tell you my experience using
Tysabri
. I have been receiving an infusion—
Tysabri
—for at 13+ years. After my diagnosis only the ABC drugs—avonex, betaseron and copaxone—were available and I had intolerable symptoms.
I don’t know about advice, but I can tell you my experience using
Tysabri
. I have been receiving an infusion—
Tysabri
—for at 13+ years. After my diagnosis only the ABC drugs—avonex, betaseron and copaxone—were available and I had intolerable symptoms.
disconcerting
in
My MSAA Community
1 year ago
It’s good to be old…sometimes
I got a call from her assistant saying that I was positive for the JC virus and to stop my
Tysabri
treatments immediately and that I would hear back from the doctor as to the next steps. That was back in February.
I got a call from her assistant saying that I was positive for the JC virus and to stop my
Tysabri
treatments immediately and that I would hear back from the doctor as to the next steps. That was back in February.
Texandyroe
in
My MSAA Community
1 year ago
I want to help if I can
I am on
Tysabri
going on 13 years and am doing very well physically right now. I have some Cognitive Quirks. But am lucky that all I have no problem with physical mobility. I retired from 13 years on my job quite awhile ago, and had to fight for my SSDI, but finally got it.
I am on
Tysabri
going on 13 years and am doing very well physically right now. I have some Cognitive Quirks. But am lucky that all I have no problem with physical mobility. I retired from 13 years on my job quite awhile ago, and had to fight for my SSDI, but finally got it.
BlondiePink
in
My MSAA Community
11 months ago
It is getting harder and harder for them to find a decent vein...
The medication is
Tysabri
.
The medication is
Tysabri
.
DVCshop
in
My MSAA Community
2 years ago
MS Treatment
I have been on
Tysabri
and will be changing medication. My Dr suggested either Mavenclad or Zeposia. Is anyone on either of these medications, and if so, can you give me your feedback on it? Thank you.
I have been on
Tysabri
and will be changing medication. My Dr suggested either Mavenclad or Zeposia. Is anyone on either of these medications, and if so, can you give me your feedback on it? Thank you.
janetdm
in
My MSAA Community
2 years ago
Zumab
AKA
Tysabri
. I had to devise an acronym to help me remember. I came up with Natalie Merchant performing atop a Zumba, a disc-like vacuum cleaner that moves across the floor on its own. Kind of a tortuous acronym but it stayed in my mind the past two years.
AKA
Tysabri
. I had to devise an acronym to help me remember. I came up with Natalie Merchant performing atop a Zumba, a disc-like vacuum cleaner that moves across the floor on its own. Kind of a tortuous acronym but it stayed in my mind the past two years.
kaypeeoh
in
Cure Parkinson's
2 years ago
HELPFUL INSIGHT WANTED
I am about to begin my exit strategy of my
Tysabri
infusions after 2+ years. Unfortunately, my JCV has been reactivated and I am not about to continue on it, and amp up my chances of PML. So, my neuro and I are discussing different options at the moment. Has anyone taken Aubagio or Mavenclad?
I am about to begin my exit strategy of my
Tysabri
infusions after 2+ years. Unfortunately, my JCV has been reactivated and I am not about to continue on it, and amp up my chances of PML. So, my neuro and I are discussing different options at the moment. Has anyone taken Aubagio or Mavenclad?
greeneye0808
in
My MSAA Community
2 years ago
Which to choose?
Trying to get real world pros and cons of
Tysabri
vs Mavenclad. If bloodwork all comes back fine, I will have to decide on one of these. Currently on Aubagio but due to side effects, I am having to stop it. Thanks for any info you can give.
Trying to get real world pros and cons of
Tysabri
vs Mavenclad. If bloodwork all comes back fine, I will have to decide on one of these. Currently on Aubagio but due to side effects, I am having to stop it. Thanks for any info you can give.
Cheerio_100
in
My MSAA Community
2 years ago
Ocrevus “crap gap”
I experienced something similar on
Tysabri
although it was only a few days before and 1-2 days after each Ty infusion. I am emotional & overwhelmed thinking that this will happen every 6 months and last for so long each time.
I experienced something similar on
Tysabri
although it was only a few days before and 1-2 days after each Ty infusion. I am emotional & overwhelmed thinking that this will happen every 6 months and last for so long each time.
Tuliplover
in
My MSAA Community
2 years ago
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