Hi, my consultant has taken me off methotrexate yesterday to start me on mycophenolate mofetil, am anxious as another one of my consultants t...
Mycophenolate Mofetil (MMF) - How is it for you ?
I have been on Mycophenolate Mofetil ( MMF ) since Feb 2016 at a dosage of 2 times 500 mg's per day, and it has kept my platelet count steady...
My wife was recently diagnosed with Vasculitis, she has been taking 80 mg of Prednisolone for 6 weeks and that was a great improvement, she h...
Coping with a vasculitis relapse
I wanted to write a bit about coping with a vasculitis disease relapse. Fell ill in 1994 aged 22, diagnosed with cerebral vasculitis in 1997....
Mycophenolate mofetil prescribed for DLE
Has anyone with DLE seen an improvement in their condition using this drug and if so how long did this take?...
Rheumy appointment sidetracked
Aw well seen my rheumy today! Well everything got sidetracked today....
Does my daughter have ana negative neurophyschiatric SLE? Cyclophosamide side effects?
My 16 year old daughter has been ill since September 2016 following an insect bite which didn't disappear, before then she was a bright, happ...
Taking mycophenolate mofetil abroad
Hi everyone my son Fin is going to Spain in a week. Does anyone know if there is any issue with taking MMF a ) on a plane and b ) into Spain?...
Prolapsed uterus - bowel movement?
Hi eveyone, well its been a while. Thoracic surgeon pleased with my recent chest x-ray and lung function test - hurray!...
Glacially slow tapering continuing
But my cerebral vasculitis isn't playing nicely, even though high dose Cyclophosphamide infusions in hospital in summer 2012 did give it a fi...
Finally starting treatment mycophenolate mofetil
Hello all 18 months of MRI's, lumbar puncture, sensory tests and copious amounts of meds they have found nothing on any tests except my blood...
Has anyone been prescribed these? I've just started them but the side affects on the packet are a little worrying....
Has Acid reflux caused my lung disease?
Was diagnosed with hypersensitivity pneumonitis several months ago now, and been on a course of mycophenolate mofetil which over a two month ...
Lupus Nephritis IV
Does anyone have experience of lupus nephritis class 4 and these drugs they’re putting me on?...
Has my daughter got cerebral vasculitis? Google 'Girl with mystery illness' photos & illness description were in newspapers Nov 2016
Originally thought to have suspected seronegative autoimmune encephalitis, has my daughter got cerebral vasculitis?...
Treatments for C3G
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria ( protein in the urin...
Morning, what a weekend... I had to stop taking mycophenolate mofetil last week, due to side effects ( acutely sore joints and feeling yuch a...
Admitted to hospital
Hi all sorry not been on for a while, been in hospital and still here! can I ask if anyone has had any problems with Mycophenolate mofetil ( ...
Mycophenolate mofetil, poss side effects.
Hi everyone, I have limited system sclerosis with raynauds and slight sjogrens symptoms, dry mouth mainly....
Hi, been wanting to join here to speak with others who have the same issues I am facing with illness and to make sure its not just me who is ...
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