Glacially slow tapering continuing
But my cerebral vasculitis isn't playing nicely, even though high dose Cyclophosphamide infusions in hospital in summer 2012 did give it a fi...
Admitted to hospital
Hi all sorry not been on for a while, been in hospital and still here! can I ask if anyone has had any problems with Mycophenolate mofetil ( ...
Has anyone been prescribed these? I've just started them but the side affects on the packet are a little worrying....
Mycophenolate mofetil, poss side effects.
Hi everyone, I have limited system sclerosis with raynauds and slight sjogrens symptoms, dry mouth mainly....
Lupus Nephritis IV
Does anyone have experience of lupus nephritis class 4 and these drugs they’re putting me on?...
Hi, been wanting to join here to speak with others who have the same issues I am facing with illness and to make sure its not just me who is ...
Different brands of Mycophenolate Mofetil. Anyone have any problems?
I have been on MMF 3g a day for a few months now. Started 1g a day in July and increased....
Pre Rehab assessment @ Mycophenolate Mofetil
I have my pre rehab assessment on Friday. What am I going to be asked to do It has been suggested that I take Mycophenolate Mofetil PF....
Just seen lupus specialist prescribed new tablets
Hey all I have not improved since my last review in Nov, in fact as well as my voice being strained and chest pains, I now have protein in my...
hiya peeps hope your all feeling ok today duppydoo here . well as i said i had an appointment to see clinical research team my appointment wa...
Update on my Dermatology Appointment, with my Knight, 13th September
I trust him and have faith in his ability and knowledge of Lupus....
Evening all! Just a quick question for those of you who take mycophenolate Mofetil ( immunosuppressant )....
Hi. I was diagnosed with organising pneumonia/ interstitial lung disease last year and after much steroid treatment, was given mycophenolate ...
How long after finishing a course of steroids do they continue to have an effect?
They had a really positive effect on my lupus ( SCLE ) symptoms....
Some important information regarding Mycophenolate Mofetil and Pregnancy.
This information was released today by the Department of Health - please follow this link. gov.uk/drug-safety-update/m......
Exactly 4 years since a big decision
It's 4 years exactly since I had to stop the Thalidomide treatment for my cerebral vasculitis, because it was causing peripheral nerve damage...
ANCA Associated Vasculitis and Proteinase 3
Rheumatologist feels I have ANCA associated vasculitis and Proteinase 3. He initially said Churg Strauss, but is now unsure as something in m...
There is RA and rheumatic fever in my family and I have had 2 other autoimmune diseases - Ulcerative Colitis & Myasthenia gravis ( muscle wea...
Mycophenolate mofetil - longer term experiences?
My experiences during my early days with ITP were much like those others refractory to steroids but responsive to IVIG have described here....
Mychophenalate 509 mg Drug side effects
Hello Everyone. Just some advice needed really....
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