Struggling with Mycophenolate

[Blyth1]

Hi all, do any of you take Nintedanib with Prednisolone? My consultant has been trying to get me onto Mycophenolate before starting me on Nintedanib , as it is steroid sparing,but I hate feeling the way I do on this drug. Constant nausea, low mood ( I don’t feel like me at all) disrupted sleep and low dull back pain. All of my bloods are fine.

I have just increased the dosage to 1 G in evening and 500 mg in the morning. I remain on 5 mg of Prednisolone for the moment.

I dread the next dosage increase in 2 weeks 😞

[Patk1]

I'd talk to Yr prescribing dr,or pharmacist.i hope someone onitsha can help you x

[Alberta56]

I hope someone will come along soon who can help you. The medicine sounds as bad as the illness. I can only suggest you go back to your medical people and send you very best wishes. xxx