Hi all, I've just been diagnosed with primary PV with confirmed JAK2 mutation aged 41. Always had red cheeks but think my diagnosis was hidden for a while as historically very active and sporty but arthritic hip stopped me in my tracks 18 months ago. Had some routine bloods done recently for fatigue symptoms and Hb came back at 199 with HCT of 0.6 and moderate splenomegaly which I had mildly 2yrs ago.
I work as a GP and a hospice dr so kind of understand the medical stuff but just wondering and hoping that you can reassure me that the headaches/dizziness/sob/nausea and brain fog improve once levels stable. Obviously work quite stressful so have taken the last few days off as not on top form and now undergoing weekly venesection. I was due to have a hip replacement in the spring but feel this will need to be delayed until my count is sorted.
Anyway I'd be grateful for any replies particularly on the feeling spaced out front improving.