I have E.T and Jak2+. I had my 3 monthly routine bloods in March and saw a registrar for my results and consultation. I have read and been told that very rarely, E.T can progress to something much nastier later on. The registrar said that being Jak2+ i was at risk of this, and people who are Jak2 Negative do not have this risk at all.
I have been quietly mulling this over and getting more and more worried so thought i would ask on here if anyone else has been told this.
My platelet count had come down by around 20 from the previous tests. I know thats not much but i was pleasantly surprised. The little bit of joy that i had had the shine taken off by this information though.
Is this the case, that being + carries the risk, yet being - does not have the risk of transforming into something much more serious?
Sorry for rambling, ive been holding this in for weeks.