Posts - Macular Society | HealthUnlocked

Macular Society

5,119 members • 2,532 posts

All posts for April 2020

Laser treatment for new vein growing central vein occlusion

I have a Central vein occlusion, I'm having injections every two months, had laser treatment for new veins growing which I found horrendous, now they said I...

I have a Central vein occlusion, I'm having injections every two months, had las...

Pablo5

•4 years ago

8 Replies

What should I do?

My eye clinic is uncertain about whether I have AMD or CSR At press they think it is CSR.I asked for a second opinion and had an appointment this coming week...

My eye clinic is uncertain about whether I have AMD or CSR At press they think i...

pinkperfection

•4 years ago

24 Replies

AMD - Cancelled Injections, Sight Deteriorated, Visit Hospital VS Covid19

Hi Mum is 90 years old with Glaucoma and AMD Her sight has deteroriated in last 4 weeks. Trying to weigh up the risks of not seeing a specialist VS risk of...

Hi Mum is 90 years old with Glaucoma and AMD Her sight has deteroriated in last ...

ColinKin

•4 years ago

9 Replies

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Heroine with macular and Charles bonnet

If anyone is interested in a mystery novel where the chief protagonist has macular and Charles bonnet syndrome I recommend The secrets you hide” by Kate helm....

If anyone is interested in a mystery novel where the chief protagonist has macul...

Shimano

•4 years ago

2 Replies

Pollen

Can high pollen worsen symptoms of wet amd.

Gofdave33

•4 years ago

3 Replies

Varifocals?

Hi, I have wet AMD in one eye and dry in the other. Having treatment which is going ok. Should I stop wearing varifocals? Have been advised that single vision...

Hi, I have wet AMD in one eye and dry in the other. Having treatment which is go...

Badgolfer45

•4 years ago

1 Reply

Macular degeneration & glaucoma

Friends, I have dry MD in one eye and am being treated for wet MD in the other. Yesterday, I had a field of vision test and my doc thinks I have glaucoma in...

Friends, I have dry MD in one eye and am being treated for wet MD in the other. ...

LB1st

•4 years ago

30 Replies

Audio Version of the PM's letter and leaflet

The Macular Society has produced audio versions of the Prime Minister’s recent communications to households in the UK, so they are accessible to those living...

The Macular Society has produced audio versions of the Prime Minister’s recent c...

Becky_MacularSociety

Partner•4 years ago

Be the first to reply

FYI How to Wash Hands Effectively

Hope this is useful x

Hidden

•4 years ago

7 Replies

Advice needed please

Hi all ..Im in lockdown in Australia ..so going to regular optometrist is a bit difficult atm ...Im not sure if this is an emergency or not . Last couple of...

Hi all ..Im in lockdown in Australia ..so going to regular optometrist is a bit ...

catt999999

•4 years ago

10 Replies

FYI : Facebook page " The Coronavirus (Covid -19) Information Centre " has a section where you can request local help

Hi all, I haven't used this and don't know if it's worldwide or just UK ( do different countries see different things on it ??) But I noticed it has a section...

Hi all, I haven't used this and don't know if it's worldwide or just UK ( do dif...

Hidden

•4 years ago

Be the first to reply

Coming off Prednisolone

Can anyone advise how long it might take for Prednisolone to leave my system completely please? I began in August 2019 on 70mg, then reduced by 10mg every 2...

Can anyone advise how long it might take for Prednisolone to leave my system com...

charlie_mk

•4 years ago

4 Replies

Petition for priority online supermarket shopping slots for the blind and partially sighted

Had an email from RNIB today which included this petition....

TwasBrillig

•4 years ago

2 Replies

Cost of Eylea goes up in the US

Pharmacies that supply Eylea to doctors are now, rather suddenly, paying a higher price for each dose of Eylea. They are billed over $460 more per shot -...

Pharmacies that supply Eylea to doctors are now, rather suddenly, paying a highe...

Jihm

•4 years ago

34 Replies

Website gives Locations of UK Volunteer Groups who might help you

Text taken from recent Macular Society FB article: "What do we do if we need help? If it is help with shopping or care in the home, or even a chat, there are...

Text taken from recent Macular Society FB article: "What do we do if we need h...

Hidden

•4 years ago

2 Replies

Strange times

Looking at some of the posts I do think we have to be incredibly patient regarding appointments. Many of us think we have reason to be prioritised which means...

Looking at some of the posts I do think we have to be incredibly patient regardi...

Catseyes235

•4 years ago

18 Replies

To clamp or not to clamp!

Hi all, just wondering what your opinion is regarding having eye clamp on while having injections. I had eye clamp only on first injection, I then had a very...

Hi all, just wondering what your opinion is regarding having eye clamp on while ...

Yeso

•4 years ago

13 Replies

Private sector

With our appointments being cancelled, and probably for lots of other medical problems, surely this could be where the private sector could step in??

With our appointments being cancelled, and probably for lots of other medical pr...

Eyecloud

•4 years ago

4 Replies

Community Eyecare Cataract and Surgical Centre - Watford

I have just been referred to this NHS service provider for my next Eylea injection (now that my private insurance will no longer fund treatment). It looks like...

I have just been referred to this NHS service provider for my next Eylea injecti...

Mpatz

•4 years ago

2 Replies

‘Fighting’ for an injection

On Wednesday my eye clinic phoned me, at first I thought it was to confirm my eye injection appointment the next day but instead it was a lady saying my...

On Wednesday my eye clinic phoned me, at first I thought it was to confirm my ey...

tallyho

•4 years ago

17 Replies

What are your tips for Self Care?

Good Morning Everyone! A little while ago I asked for your tips on cleaning, thank you to those that shared, really appreciated. This time I'm asking for quick...

Good Morning Everyone! A little while ago I asked for your tips on cleaning, tha...

Becky_MacularSociety

Partner•4 years ago

5 Replies

can the macular society help please

Hi, Have had injection cancelled and new appt will mean six months, rather than 8 weeks, between my injections. Can't get answers from Moorfields (ST Georges)...

Hi, Have had injection cancelled and new appt will mean six months, rather than ...

rosyG

•4 years ago

40 Replies

Visually impaired and shopping vulnerabilites

Dr Amit Patel and others currently on tv Breakfast show highlighting the problems of visually impaired not being classed as vulnerable/ at risk during covid19,...

Dr Amit Patel and others currently on tv Breakfast show highlighting the problem...

Hidden

•4 years ago

6 Replies

Eylea - silicone

Hi, My husband has his second injection today and now has a black blob in his field of vision. He is worried that it is silicone oil from the syringe. Does...

Hi, My husband has his second injection today and now has a black blob in his fi...

smallpurplecat

•4 years ago

44 Replies

Can I go the supermarket? Or am I high risk?

Hi all, I have had conflicting advice from my GP and ophthalmologist on whether I should be self isolating. I am on 10mg of prednisolone for Punctate Inner...

Hi all, I have had conflicting advice from my GP and ophthalmologist on whether ...

BLW95

•4 years ago

9 Replies

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Learning about Macular Conditions

AMD Research Webinar June 2020

Community Guidelines - Everyone Please Read

Add Topics to your post!

Corona Virus + Self Isolation

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Posts - Macular Society | HealthUnlocked

Macular Society

All posts for April 2020

Laser treatment for new vein growing central vein occlusion

What should I do?

AMD - Cancelled Injections, Sight Deteriorated, Visit Hospital VS Covid19

Heroine with macular and Charles bonnet

Pollen

Varifocals?

Macular degeneration & glaucoma

Audio Version of the PM's letter and leaflet

FYI How to Wash Hands Effectively

Advice needed please

FYI : Facebook page " The Coronavirus (Covid -19) Information Centre " has a section where you can request local help

Coming off Prednisolone

Petition for priority online supermarket shopping slots for the blind and partially sighted

Cost of Eylea goes up in the US

Website gives Locations of UK Volunteer Groups who might help you

Strange times

To clamp or not to clamp!

Private sector

Community Eyecare Cataract and Surgical Centre - Watford

‘Fighting’ for an injection

What are your tips for Self Care?

can the macular society help please

Visually impaired and shopping vulnerabilites

Eylea - silicone

Can I go the supermarket? Or am I high risk?

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Pinned Posts

Topics

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