Posts - Macular Society | HealthUnlocked

Macular Society

5,120 members • 2,532 posts

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Pseudoxanthoma Elasticum

Hi I was wondering if anyone else on here has this condition? It causes macular degeneration which is not age related. I have just had my first eye bleeds at...

Hi I was wondering if anyone else on here has this condition? It causes macular ...

•2 years ago

Myopic CNV - a patch?

Hey, I was diagnosed w Myopic CNV a bit more than a month ago and had two Lucentis shots in the affected eye. OCT showed that the drug works but my eyesight is...

Hey, I was diagnosed w Myopic CNV a bit more than a month ago and had two Lucent...

•2 years ago

Working Out & Make Up During Eye Injection Treatment

Hi everyone, Hope you are all well. Two weeks ago I was diagnosed with myopic CNV in my left eye, I went through my first injection last week - and then had...

Hi everyone, Hope you are all well. Two weeks ago I was diagnosed with myopic ...

•3 years ago

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Newly Diagnosed First Treatment Coming Up

Recently diagnosed with DME and going for first eylea injection in two days. Have always been one to put my faith in medical specialists. Hoping this works....

Recently diagnosed with DME and going for first eylea injection in two days. Hav...

•3 years ago

I'm new here. Why is my bad eye is better than my good eye at night?

At night, in the dim light of my bedroom, my left, dry eye has a large black central spot, and the right, wet one (progressed to wet 2 months ago) has a...

At night, in the dim light of my bedroom, my left, dry eye has a large black cen...

•3 years ago

Learning about Macular Conditions

Good Morning Everyone, You may have been aware, but at the start of October, we created and uploaded our first learning programme about AMD. This is something...

Good Morning Everyone, You may have been aware, but at the start of October, we...

Becky_MacularSociety

Partner•4 years ago

lucentis injection

hello! hope everyone here is safe and well in this time of pandemic. i would like to know if anyone here has severe myopia and have had the lucentis injection;...

hello! hope everyone here is safe and well in this time of pandemic. i would lik...

•4 years ago

Helpful Stuff - organisations that offer support and info ( by country) = UK

The Macular Society - website, www.macularsociety.org ; helpline, 0300 3030 111 ; Facebook page, Working Age groups RNIB - website www.rnib.org.uk ; sight...

The Macular Society - website, www.macularsociety.org ; helpline, 0300 3030 11...

•4 years ago

Helpful Stuff - organisations that offer support and info ( by country) = USA

Copied from a Mac soc post: Although this site has members from all over the globe, the Macular Society are a UK charity so are unaware of consultants in other...

Copied from a Mac soc post: Although this site has members from all over the glo...

•4 years ago

HELPFUL STUFF Things to ask when newly diagnosed or if told you need more tests to determine a diagnosis

These are generic suggestions from my personal experience but hopefully give a good basis to move forward from. Everyone has their own journey with their eye...

These are generic suggestions from my personal experience but hopefully give a ...

•4 years ago

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