Learning about Macular Conditions

[Becky_MacularSociety]

Good Morning Everyone,

You may have been aware, but at the start of October, we created and uploaded our first learning programme about AMD. This is something anyone can access to learn more about Macular Conditions. We are wanting to create more about different topics, but our first one is about Understanding AMD which goes into detail about AMD and Charles Bonnet Syndrome.

As we create more programmes, I will have the links to each programme here.

Understanding AMD:

healthunlocked.com/programs...

Treatment for AMD:

healthunlocked.com/programs...

We hope you like them. Feel free to share these with your friends and family to help them understand too.

All the Best,

Becky

[Catseyes235]

I can thoroughly recommend this - especially how someone with macular sees the world - to friends and relatives. Would be great shown to people in hospital to those caring for elderly who have not come across this. My elderly brother, when alive, was registered blind through AMD. Because he didn’t ‘look blind’ as people said and followed a person talking, he wasn’t always taken seriously as sight impaired.

[Becky_MacularSociety Partner in reply to Catseyes235]

Good Afternoon Catseyes235,

Thank you for your feedback, it's good to know you recommend this and think it'll be a great help to other. We appreciate your comments.

Best Wishes,

Becky

[Hrosie]

Thank you Becky - this was really helpful. xx

[Becky_MacularSociety Partner in reply to Hrosie]

Good Afternoon Hrosie,

Thank you for your feedback, I'm glad it was helpful, we appreciate your comments

Best Wishes,

Becky

[springcross]

This was really good Becky, my husband and I watched it together and found it very interesting. Many thanks. x

[Becky_MacularSociety Partner in reply to springcross]

Good Afternoon Springcross

Thank you for your feedback, I'm glad you and your husband enjoyed it and found it interesting. Appreciate the comments

Best Wishes,

Becky

[3furryfiends]

Might I suggest e-mailing this to GP surgeries? The Gps I have seen -( 5 out of a team of 10) knew nothing about the condition!! One even told me "tough luck " and to come back when I got it my right eye. I even had to wait a week when I was feeling very down/suicidal. I even told the GPs of my feelings and they did absolutely nothing!! Luckily I found another form of support and this one didn't walk away. Just because you cannot see the disability doesn't mean it is less important. I found my GPs to be rude ,dismissive and uncaring.

[springcross in reply to 3furryfiends]

That's awful 3ff. What a terrible attitude for a GP to have, I would be tempted to make a complaint about that as if they are not corrected, they go on doing it to other people. x

[Becky_MacularSociety Partner in reply to 3furryfiends]

Good Morning 3furryfriends,

Thank you for your feedback, we do continually try and work alongside medical professionals to raise awareness of the condition and to ensure patients aren't just "put to one side" after being told they have MD. This is an ongoing process, I will pass on your feedback to the team here, we appreciate your comments

All the best

Becky

[MillyMollyMandy68]

How can I find if my conditon is macular related? I can see similar conditions mentioned like PIC but not idiopathic multifocal choroiditis which I have been diagnosed with.Thanks

[RosMacularSociety Partner in reply to MillyMollyMandy68]

Hello MillyMollyMandy68,

I will check with our research department for you.

Kind regards,

Macular Society Helpline

Tel [phone]

Email: help@macularsociety,org

macularsociety.org

[RosMacularSociety Partner in reply to MillyMollyMandy68]

Dear MillyMollyMandy68,

I have checked with our research department, and they have come back with the following information, which you could use as a discussion point with your ophthalmologist:

"This conditions seems to have the potential to impact the macular in some cases but generally affects the wider retina."

eyewiki.aao.org/Idiopathic_...

ophthalmologybreakingnews.c...

Kind regards,

Macular Society Helpline

Tel [phone]

Email: help@macularsociety,org

macularsociety.org

[MillyMollyMandy68]

Thank you for your response and the extra information

[Georgie_M]

Thanks for this!