Posts - Macular Society | HealthUnlocked

Macular Society

5,118 members • 2,532 posts

All posts for April 2022

Pseudoxanthoma Elasticum

Hi I was wondering if anyone else on here has this condition? It causes macular degeneration which is not age related. I have just had my first eye bleeds at...

Hi I was wondering if anyone else on here has this condition? It causes macular ...

Shellyshell22

•2 years ago

1 Reply

AMD patients can you help please?

Anyone on here with AMD that can help with this? These are lovely blokes with a heart of gold. No email or identifiable information is shared with Roche and I...

Anyone on here with AMD that can help with this? These are lovely blokes with a ...

tallyho

•2 years ago

2 Replies

Webinar- Thursday 28th April 6.30pm

On Thursday 28 April at 6.30pm, where we will be joined by professor Andrew Webster who will be discussing genetics and eye disease and the role of genetic...

On Thursday 28 April at 6.30pm, where we will be joined by professor Andrew Webs...

Kelly_macularsociety

Partner•2 years ago

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Problems with Eylea injection

My husband had an eylea injection Feb 14, 2022 and a day later he lost all vision in the eye..........he experienced an eye infection that took away his...

My husband had an eylea injection Feb 14, 2022 and a day later he lost all visio...

bruno5485

•2 years ago

6 Replies

Update - deterioration between injections

Hi everyone, many thanks for all your helpful replies and good wishes, they are greatly appreciated. I was able to see my consultant today and he confirmed...

Hi everyone, many thanks for all your helpful replies and good wishes, they are ...

Fattypatty

•2 years ago

3 Replies

Detioration between injections of Eyelea 2

Hi everyone, I’m looking for some friendly help. I have been having Eyelea2 injections for two years, these being given every four weeks initially, then every...

Hi everyone, I’m looking for some friendly help. I have been having Eyelea2 inje...

Fattypatty

•2 years ago

18 Replies

Timeframe for antivegf injections…

Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to...

Hello me again! Sorry this is all really new to me. I ve just a week ago had a m...

Deepbluesea2022

•2 years ago

20 Replies

Macula bleed

Hello all I’m 48 and have had high myopia for most of my life. I m currently -12 prescription and have been vigilant with my eyes for most of my eyes- mainly...

Hello all I’m 48 and have had high myopia for most of my life. I m currently -12...

Deepbluesea2022

•2 years ago

9 Replies

chronic CSR, 7 yrs

Hello, I have a family member with chronic CSR, which means fluid gets leaked distorting his vision, he is going to be have a second argon laser surgery as he...

Hello, I have a family member with chronic CSR, which means fluid gets leaked di...

pila123

•2 years ago

12 Replies

Macular Oedema

This week I went for my years late retinal screening. I had noticed I was starting to struggle with small print but put it down to using an old pair of reading...

This week I went for my years late retinal screening. I had noticed I was starti...

MichaelJH

•2 years ago

20 Replies

PDT VS MICRO-PULSE FOR CSR

Hello everybody! I got to see my retina specialist once again. To check on my current CSR bleed. They did the whole bit, they ran color through my eyes and...

Hello everybody! I got to see my retina specialist once again. To check on my c...

T109

•2 years ago

20 Replies

Macular Degeneration and Living at Higher Elevations

I have a friend that was recently diagnosed with macular degeneration (wet) and they are also considering moving permanently to the mountains with an elevation...

I have a friend that was recently diagnosed with macular degeneration (wet) and ...

Mountain_High

•2 years ago

3 Replies

Antabuse (disulfiram) Anyone using this for Macular degeneration?

Has anyone be using Antabuse for AMD? What country and hospital? Have you found improment in your vision? Any other comments? best regards de-luke The Full...

Has anyone be using Antabuse for AMD? What country and hospital? Have you found ...

de-luke

•2 years ago

9 Replies

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Posts - Macular Society | HealthUnlocked

Macular Society

All posts for April 2022

Pseudoxanthoma Elasticum

AMD patients can you help please?

Webinar- Thursday 28th April 6.30pm

Problems with Eylea injection

Update - deterioration between injections

Detioration between injections of Eyelea 2

Timeframe for antivegf injections…

Macula bleed

chronic CSR, 7 yrs

Macular Oedema

PDT VS MICRO-PULSE FOR CSR

Macular Degeneration and Living at Higher Elevations

Antabuse (disulfiram) Anyone using this for Macular degeneration?

Search posts

Pinned Posts

Topics

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