Peripapillary CNV

[ironbrain]

After 18 months without an Eylea injection, I was given an appointment for treatment. The OCT showed a leak further out from the fovea than the one I had had before, which itself was some way from the fovea. I had a second OCT (which I've not seen) taken of the optic disc.

In a letter that came after I'd had the new Eylea injection, it says the problem is "peripapillary choroidal neovascular membrane".

The size of the leak had apparently decreased between when I had the mac test and when I went in for treatment, which is hopefully good news. However, I understand from searching the Internet that the problem may well impinge on the optic nerve. Does anyone else have experience of this specific wet AMD problem and/or know what the prognosis is?

[Rosalyn-helpline Partner]

Hello ironbrain,

The following abstract from 2011 gives a brief overview of the condition, which you could use as a discussion point with your ophthalmologist:

pubmed.ncbi.nlm.nih.gov/218...

Optometry, 2011 Nov;82(11):681-8. doi: 10.1016/j.optm.2011.04.104. Epub 2011 Aug 27.

Peripapillary subretinal neovascular membranes: a review

Abstract

Peripapillary subretinal neovascular membranes (PSRNVM) are most commonly associated with age-related macular degeneration and idiopathic causes in older patients. In younger patients, the condition has been linked to a wide variety of other conditions. As with the more commonly occurring macular form of choroidal neovascular membranes, PSRNVM can also lead to severe vision loss. Therefore, clinicians must take care to avoid overlooking this event to provide appropriate management and treatment. Current knowledge of PSRNVM suggests the importance of regular examinations of the affected eye in both treated and untreated cases to watch for progression and recurrence, which are unpredictable, and also of the fellow eye because there is a high risk of bilateral involvement.

Kind regards,

Rosalyn

Macular Society Advice and Information Service

[ironbrain in reply to Rosalyn-helpline]

Thank you, Rosalyn. The ophthalmologist seemed to be suggesting a number of (more) regular (than in the recent past) checkups with immediate injections of Eylea pro re nata.