reactions to anti biotics: keep picking up... - LUPUS UK

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reactions to anti biotics

scoobydoo1 profile image
7 Replies

keep picking up infections and put on differing anti biotics, doxycycline for the kast one which made me shake and tremour like mad, clarythromycin for this one and thats made me have deranged sleep paterns, nausea, vomiting and diarrhoea. my question is is this common with lupies to react to meds so much?

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DaleDiva profile image
DaleDiva

It actualy says on the leaflet for Doxycycline not to be taken by Lupus patients. My daughter who was not diagnosed had a severe reaction to it.

I also reacted to Naprosyn, must be something in the drugs chemicals that make Lupies react

Melinda profile image
Melinda

I have read that people with Lupus can have a reaction to some antibiotics, but i can honestly say i've never had one. My mother on the other hand, who had RA, was allergic to Penicillin.

I have allergic reactions to 9 antibiotics. Doxycyclin was terrible. I have made a list of gbosd drugs I have had reactions to and carry them in my wallet. Some of the drugs have caused huge flares resulting me having to take a large dose of steroids to stop the flare.

Nightjar profile image
Nightjar

The consultant who diagnosed me (15 years ago) said to avoid antibiotics and I still live by that. I keep oxygen drops, colloidal silver, various vitamins, herbal and homoeopathic remedies in my cupboard. There are many natural remedies to choose from. I go for 'nature' first - would only go for antibiotics if nothing else helps (not happened yet). Finely chopped raw onion or garlic are also helpful when infections. Not all natural remedies are suitable for lupies mind. Echinacea, which works so well for 'normal' people, doesn't work for most lupies. I get flu-symptoms from it, so that's one bottle my husband can keep for himself! ;)

I hope you find something to suit you. Good luck! xxx

Cann profile image
Cann

I became seriously ill after two courses of cefradine - broad spectrum antibiotic in hospital. I was already allergic to penicillin.

All the symptoms described by others here, plus more, but I wouldn't go back into hospital because I knew it could kill me trying this drug and that one.

I agree with Nightjar and that is the route that I take.

I wish I'd always taken that route.

I was very bad after Echinacea, however and don't use it now.

We are all different, it seems, and we all have to be careful and make sure it is right for us.

All the best to you all. I understand completely the difficult life we all have.

Been quite bad for couple of days after spending the afternoon with a friend whose house is near to a mast. I thought I could cope with it now, but obviously not.

Maraid profile image
Maraid

Yes I get pneumonia a lot and have to use antibiotics but am allergic to penicillin and yes I find I get lots of side effects that make me feel awful: every part of my body aches, exhaustion, oral thrush and very painful sores in my nose and my dry skin gets worse and I get a terrible taste in my mouth and thankfully only twice I had night terrors!!! But don't have a choice because I always get bad in the middle of the night so end up in A&E and you cannot get hold of an alternative therapist at such a time.... Grrrrrrrr, very frustrating!!! Best wishes to you x

Emmalouise_0209_82 profile image
Emmalouise_0209_82

I get infections all the time with my lupus and the docs never check weather the tablet can be taken with lupus!! 90% it's ok but sometimes it can't and I have a flare up and my infection gets worst! Make sure you ask if the tablet is lupus friendly :) xx

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