LUPUS UK
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Weird Allergic Reactions

Hey guys, just wondering if anyone else suffers from strange allergic reactions where you can’t pinpoint the cause? Both this morning and this evening my face has swollen up like a balloon, all around my jaw and my lips and I have no clue why? Last month a similar thing happened and I ended up in hospital as my throat began to close up. Is this ‘normal’ for lupus or should I get it checked out? Thanks x

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Hi there. ☺️

I am not diagnosed with lupus. I'm actually still waiting for results. However, when I was in college I would always get hives. Each time it was different. At one point I had to go to the ER. Some days wore worse than others. I got a bunch of allergy test done but everything came back negative. Honestly, I don't know if it's lupus related but I did experience what you are talking about.

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Hey! How strange!! I’ve had hives too. Good luck with all your test results. Xx

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Thank you 😊 and yes it's weird but I don't get them anymore. Thankfully 😌 Did you get an allergy testing done?

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No not yet, just got given a course of steroids when it happened last time. X

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Oh alright. Well I hope all goes well and I hope you feel better 🤗

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Unf4bul0us,

I don’t have Lupus.

I had the same problem many years ago with swollen face etc and always ended up at the local emergency doctor’s clinic. This went on for about 10 years, I tried to backtrack and work out what had caused it each time but couldn’t work it out. Each time I was given a high dose of prednisolone to help and always carry an Epipen on me.

This happened a few times a year and was before I became very ill with Scleroderma/Myositis. It also only happened on Fri/Sat, on one occasion I took a Chinese takeaway box to my GP and he did some nut testing and found out I was allergic to Hazelnuts and pralines, as we would have the odd takeaway on a Friday and then on some occasions have some pralines.

It took years to find and strangely enough 3 years ago when II became very ill I became allergic to penicillin and several other things.

My advice is to try and keep a diary for a while on what you eat and do, like changing sheets (has the washing powder been changed).

It took a long time to find out but got it solved in the end.

Good luck.

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Oh my 10 years!!! That sounds awful. Thanks for the advice, I’m definitely going to start keeping track of everything. X

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Hi unf4bl0us :)

I do have Lupus but I also have ecsma so most of my allergies are from that!

I find my skin is extremely sensitive to some washing powders that others use, dust , stress and pollen. Pollen sometimes even makes my eyes swell. I think the best things to do, as others have said is keep track of what you are eating or if you have a reaction after interacting with something in paticular.

Ask your GP for some allergy testing! You may get a lovely long list like me :)

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Apart from hives, I don’t tend to get skin involvement in my reactions. I’m definitely going to try keeping track of everything and go for some allergy testing. Thank you x

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Recently I’ve discovered I’m allergic to silver. I never used to be but now if I wear a silver necklace I come out in a rash round my neck. And silver earrings gave me painful ear lobes for a week! I’m going to ask dermie at my next appointment but has anyone else on here had anything like this? I wondered if it could have anything to do with then sulphur in hydroxychloroquine sulphate? Or am I just weird???

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Is it silver? Are the items pure silver or do they have some nickel in them? That is a very common allergy and can be rather a nuisance as so many poppers or jeans buttons have nickel in them.

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No, I think it’s just silver as I can wear cheap jewellery with no problems.

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How bizarre... Silver allergy does occur - but it is very rare.

This is quite good

dermnetnz.org/topics/jewelr...

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Oh how odd, not heard of silver allergy but have heard of it in other metals!! Hope you manage to get some answers x

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Hi, I had similar when I took diclofenac, I had taken it years ago with no reaction.

Sometimes our immune systems are overloaded and react to things they did not previously.

Keeping a diary and trying exclusion tests help pin it down.

Good luck.

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The exact same thing happened to me with aspirin, apparently NSAID reactions are quite common in lupus (which isn’t helpful because we need them frequently!!) x

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If it is that bad you DO need to get it checked out - and possibly issued with an epi-pen or the like in case it happens again and gets too bad.

Keep a diary to try to narrow down the cause - but it is very difficult. I have a food allergy, doesn't cause swollen lips or anything like that, just violent D&V until I have got rid of whatever it is but the immunologist said we could test for years and not find what it is, I should take antihistamines and that works fine for me.

I don't want to scare you, but the problem is that once you develop an allergic reaction like that to something it can suddenly get worse. So you need to be prepared.

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Yeah I do know how bad it can get as my throat started closing up last month because of it. I take daily antihistamines but they don’t seem to work. After my last big reaction I was given prednisolone and double the dose of antihistamines which did calm things down but only for so long. Xx

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Then you MUST get through to the medics how bad it has become.

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I had this all of the time! I now take Benadryl almost daily. I'm not allergic to anything (technically).

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I take antihistamines daily too but it doesn’t help as I’m still getting reactions which is odd!! X

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